Forum Discussion
Annski
6 years agoMember
Hullo @Daisyday, I'm glad to hear that the decision has been made and that you will have a management plan which takes into account all your issues. I had several reasons for not wanting chemo when I was diagnosed in November 2017, I was 72, I have recurrent long QT syndrome ( a heart arrhythmia) and had had three unrelated surgeries in the previous few years. All the same, my tumour-load was large and I had 9/20 affected lymph nodes, two of them with extrusion (i.e. the cancer cells had already extended out from the nodes). On the other hand I was HR and PR positive, HER -ve and my Pi67 was only 16. So it was a bit of a tough call. I had mastectomy then surgeon and two oncologists said I should have AC+T, but a radiation oncologist (a top specialist) disagreed and said chemo didn't work so well on older women and radiation and Femara (Letrozole - an AI) would probably be preferable given the other co-morbidities. So I said no to chemo and have never regretted it. The surgery was fine, I've managed the lymph issues fine (with the help of a great oncology masseuse), the radiation was a bit of a struggle but manageable and I have only minor problems with the Femara. I'm two years on and doing very well apart from some emotional stuff which the cancer has brought to the fore. I may have lost 3-5% statistical life expectancy but the quality of life at my age feels so much more important. And I am sure you will do well too. Yes, it's still a hard road but you will get through it. Side effects may be very few and the overall management of your whole body/health/spirit is the thing to focus on. However you do need to follow up and advocate for yourself - the new cancer centre sounds good but they will only contact you if your oncologist/surgeon has arranged it. So don't be shy about asking what is going on. These first weeks are the most traumatic. Also don't forget that you can have public treatment for your radiation which is exactly the same as private treatment and free, so don't sign up for that with a private provider. Thinking of you and hoping all goes fine with this next bit, Annski.