Advice on Prosigna

Hi @RoslynT,

It is difficult enough to make a decision regarding treatment let alone when you are feeling emotional. My diagnosis was a little different to yours. I was stage 2b IDC, 90% oestrogen +, 10% progesterone +, HER 2-. My medical onc strongly recommended chemo. I was extremely reluctant. I asked for genome testing to be done. I originally enquired about the Oncotype DX test however it is not validated for pre-menopausal patients. I chose to pay the $3000 for the Prosigna test however my Oncologist didn't want to wait for results (it took 10 business days) and chemo was started. At the time my thinking was that the information would still be useful. I thought that if it came back that I was low risk then I could stop chemo early if I was unable to cope with the side effects. On the other hand, I thought if it came back as medium risk then it would assist in making decisions re duration (5 or 10 years) of hormone therapy. I was not prepared for the results. The Prosigna test showed that my tumour was high risk with a 41% chance of distant reoccurrence in ten years. I felt like I had been diagnosed anew. Personally, I wish I had not bothered to have the test, to waste that much money on a test that actually didn't and now won't change my treatment. Your situation is different. The test may well show that you are low risk and that you may not benefit from chemo. However, if you are feeling that you may regret not doing chemo and chose to proceed, please know that this network of amazing ladies can offer candid advise, support and even some humour along the way. So many of these ladies helped me while I was in active treatment.  No one wants chemo but as you may well read amongst many other posts here chemo is doable. If I had to make the decision again, for me, I wouldn't take the test. I should have invested in my future and taken a bloody holiday instead! If you have any other questions about the test please don't hesitate to message me. Sophie