Forum Discussion
Where im at...
Its 8 weeks today since diagnosis of triple neg DCIS4, intrusive, evasive, aggressive. Ive undergone a lumpectomy, a R breast removal, auxillery clearance ( 1/17 with cancer), several lung, bone, liver, chest CT's and scans, a Barium X-ray soon due to swollowing difficulties, I had a 'Port' put in last wednesday and now im finding that sore and achey as the pain killers have worn off and the swelling has gone down, but in hindsite its better than being poked for a vein and ending up with a large flumbitis in my arm! My 1st chemo was awful, in hospital for 4 days due to profuse vomiting! and then the Filgrastim injection to protect your bones and marrow made me feel like i was run over by a steamroller, twice! For about a week! My 2nd chemo on wednesday, and im staying in hospital incase i react bad again. I have to stay in SALE hospital where my chemo is, as i cant get into Bairnsdale, I have to be away from my husband and son for maybe up to 4 days. Theres no point my man travelling to see me until im ready to go home. I feel so alone right now, I dont know anyone up there! Im getting a friend to take me so my man can utilise the day off work to pick me up. Im downing panamax ( panadol) like its going out of fashion this week, I had a whole 7 days of feeling fantastic! So i figure its like this, ... chemo-7days of feeling crap-7 days of feeling awsome, - 7 daysof feeling crap again! That ads up to my 21 day cycle of chemo, for 6 months, then radio for 6 weeks, where i will live at Centenary House in Traralgon monday to friday, and drive back up to home at Lakes Entrance for the weekends, hoping i feel up to driving, otherwise, its train or bus. The shopping centres are about 5 k away from the hospital and i have to supply my own food etc. Apparently theres a service bus. GOD THIS IS SO DAMN HARD!!! I find myself wondering, How In Hell did i get to this point in my life? What prompted BC in me when i have NO history, and im under 50??? I had bladder / urethra cancer at 32, and it was allremoved and treated with pills and surgery, i have a SPC ( catheter) in my tummy to my bladder to pee from, THAT doesnt worry me, except for the cath changes every 6 weeks, stings a tad, but manageable, and over with quick, then i go shopping, but THIS>???? And, im ONLY at 8 weeks!!!
24 Replies
You are so right about the fatigue my biggest concern that i wont be able to get out of bed by the end of it.
Jo-Anne
Thanks for letting me know just had my last AC and start taxol in 3 weeks feeling very tired and sick of everything but i least am nearly half way though. I finish on the 31st july and am trying to keep that strong in my mind.
Jo-Anne
- Hi gayle I couldn't agree more about the fatigue... Sorry but I've found it gets worse as chemo progresses. I had an appt with my oncologist today and I said how frustrated I was at not being able to do things I wanted due to fatigue and getting out of breath. I was diagnosed with bilateral lung clots after 2nd chemo and she said I still need to take it easy. Just fluffing around in my small vege patch had me exhausted over the weekend. I have 16 steps from my front door upstairs and some days I have to sit down half way up to catch my breath. Take care of yourself and rest when you need to. Mel xxx
Im not on taxol, nor do i know anything about it, but i DO know about the fatigue! My god! It worries me that for 6 days after chemo all i do is nap, nap,and nod off. My husband was talking to me the other day and i fell asleep, i felt really bad! The whole FEC 5FU chemo treatment is harsh on my body.
If you asked me whats the hardest thing Ive ever had to do in my life, THIS IS IT! CHEMO!
