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Nadi's avatar
Nadi
Member
7 years ago

What is this? BC was all behind me

I have been doing really well. I mean really, really well. Diagnosed Oct 2015, surgery chemo, radiation, 12 months Herceptin all over by Dec 2016. Finally got back to work full time more than a year ago. Full steam ahead. Hot flushes - damn annoying - ever present and fluctuate in number from week to week, but so much better than before. Doing a demanding job that I love working 50 hours plus a week which I also don't mind. 32 kgs weight loss post chemo maintained. Neuropathy and osteo arthritis pain from taxol being managed. Did big OS trip which was great. Had port removed. Wasn't thinking about BC at all. It was in the past. All over. All done. Finished. So long and thanks for all the fish. Really everything was great.

Then 5-6 weeks ago I started getting tired and didn't  quite feel like myself. This has since turned into fatigue. Knock-me-down-wipe-me-out-have-to-sleep-right-this-very-minute type of fatigue just like back when I was doing chemo. Dragged myself around for weeks and then was sent home from work because I literally fell asleep at my desk. Totally not the new me. Had to go on reduced work hours which is hurting my pay packet. 

Blood tests show my billirubin levels are high but I am not jaundiced.  Blood pressure 160/120. Stomach bloated but not firm. Still my GP thinks that it could all be nothing serious as sometimes liver function tests show weird things, my blood pressure has been on the high side in the past,  and my BC was node negative, so we'll test again in 2 weeks.

Then today the cancer psychiatrist mentioned  that a lot of women similar to me who are forced into menopause by chemo often report a return of the same exhaustion they felt during treatment sometimes 2 or more years after treatment. Really??? I have never heard this. I mean I knew that the hot flushes can linger or come and go for a long time, I also heard that some women never quite return back to the way they were, but I don't think I have ever heard anyone mention their fatigue had returned after they have enjoyed a long period without it.

Just wondering if this sounds right? Have others experienced a return of fatigue so long after treatment finished and after doing well for a period of time? If so, is there something that made it better or go away? I so need to get my mojo back. Any advice is appreciated.

P.S. I am really careful about what I eat (good, sensible food, low-no sugar, minimal alcohol), am maintaining good gut health with diet and a probiotic, have reasonable activity given my arthritis, and tests show good iron, Vitamin D etc etc.