Wow JDakic, you are a true survivor! Like you, I find my doctors are only too happy to deal with "difficult patients". I do keep mine on their toes but I also try to intesperse my difficulty with good humour and thank them for caring about me. We are all human and all like to hear that.
I found keeping a journal, getting copies of every test result, particularly pathology as well as medical history, family medical history etc kept me feeling I was in charge of this disease. Reading latest medical journals etc. Having copies of pathology helped me research my own odds and helped me make informed decisions and allowed me to properly understand why a particular treatment was or wasn't recommended. For me, knowledge is power - I just gives me peace of mind. I also found I needed less and less appointment time. But, we are all different. I completely understand women who just don't want to know and accepts everything the medico says. This is their way to survive the disease. It is what keeps them strong. We are all very different. I would never tell a woman how to manage her disease. What works for one may not work for another. I love the women on this site. I love reading their stories. Yours was truly inspirational. Thankyou
