@arpie Fingers crossed your link posts successfully to BreastScreen NSW's Facebook page. They delete posts that contradict their propaganda and the result is a Facebook page that's a mutual admiration society.
Here's a link to the discussion I initiated earlier this year about the abject failures of BreastScreen NSW in which we shared comments -https://onlinenetwork.bcna.org.au/discussion/23163/two-things-about-breastscreen-nsw
For women like you who with ILC, BreastScreen NSW isn't equipped to screen for it. Their screening 2D mammograms (in their facilities and on the buses) combined with dense breast tissue mean they are unlikely to detect ILC. Thus you received an 'all clear' (false negative) letter from BreastScreen NSW only to be diagnosed just months later due to investigations initiated by your switched-on GP.
If you'd been screened at a private clinic it's likely the reading radiologist would have flagged your dense breast tissue and recommended ultrasound and a 3D mammogram for better images...and you would have received your ILC diagnosis. Your GP saved you. Otherwise you would have continued on your merry way, undetected but with a cancer that would have continued to grow.
I agree with @afraser. It's my right to know about my body. It is indefensible that BreastScreen (except WA) does not inform women about their breast density. The radiographer knows by looking at your images as she takes them, the radiologist knows when reading your images but they can't say anything. BreastScreen Australia has bought their silence, and refuses to assess and report breast density to a woman and her GP. I'll call it what it is - dereliction of duty.
