I’m so glad I stumbled on your post, but not glad to have found so many others also in pain.
i completed chemo and radiotherapy, managing to get just about every side going, including every hormone option explored to only find side effects intolerable and being advised to cease treatment. 4 years on I’m still in significant pain, it appears treatment has triggered inflammatory arthritis, and fibromyalgia, worsened osteoarthritis. I have Canel stenosis in my spine from degenerative arthritis, last year my left leg threw a wobbly and refused to work or feel anything, I had to relearn to walk, I’d just got confident walking with no aids and a 18mm hole has developed in my knee end of the femur.
ive tried just about every medication, running thru lots of different meds, most I couldn’t tolerate, the one thing that has the biggest impact on the stiffness and soreness has been low dose prednisone, now I have to wean of it, it’s becoming increasingly difficult to move and use feet and hands.
i managed to access medicinal Cannibus thru the special access scheme, and it helped a little, the dose required to adequately cover my pain tho was cost prohibitive, so I’ve had to cease it, and that I can’t legally drive whilst on the medication was another consideration, although at the the moment I’m not driving because of pain in my right knee.
the price of accessing it is coming down, just not fast enough.
good luck Everyone, I think it’s a matter of trail and error finding the best combination individually, our body’s react according to what ever whim lol. 😘
