@Sunshine1 That sounds really painful! Poor you - not at all what you were expecting. I think it is good you listened to your body/made a decision you felt was right. I have been doing as told until chemo 5 and in consultation with my psych insisted on a week off chemo as the neutropenia hospitalisations left me psychologically and physically weak. I'm not advocating it for everyone, I just needed a break and it did help. I also discussed with the chemo onc not taking the Lipeg for chemo 5 seeing as I got neutropenia 4 days after. Something just felt wrong. Maybe I am having a reaction to it as I got all it's side effects ...including neutropenia. The onc said the Lipeg probably helped me get through the neutropenia and didn't want to discontinue as I queried. However my chemo nurse raised the query with the Professor and she stopped the Lipeg and reduced my chemo dose! This is after two registrars giving Lipeg the go ahead! So far I have only had mild joint pain, taking panadol around the clock. Monitoring my temp. If I do get it again, at least I've tried another option. Frankly I couldn't face the pain. I haven't had a bub like you but felt like my knees were shards of bone and I was crawling around on all fours into the hot bath when I could and and then the hot shower! Was glad to get to hospital. It is interesting to hear people talking about these side effects as I don't see them in lots of books. Rest on the weekend and lets hope we both get a smooth cycle ... yours was more than rough! Hugs xxx
