I'm sorry you're having this issue at the moment. While it's not something I've got experience with, having had a lumpectomy, I do have issues with breast lymphoedema and scarring. My lymphoedema therapist has a massage therapist workiing with her, with lymphoedema qualifications. Just wondering if it might be worth you finding someone like that. This therapist works magic with scar release.
To find someone in your area, check this link to the Australasian Lymphology Association website
http://www.lymphoedema.org.au/the-register-updated/find-an-ala-accredited-practitioner/Hope this helps