Forum Discussion
Chixon
11 years agoMember
Scans after Treatment
Just wondering if others have been offered Scans after finishing treatment. I thought I would have them on a yearly basis to check on things...but after speaking to my medical and radiation oncologists..they said NO!....mentioning that I need to stay vigilant and report any ongoing symptoms. Not even a blood test! This doesn't seem very proactive treatment to me. Would appreciate your input. Chris.
36 Replies
- VivWMember
When the table vibrated it was like being on the Superman ride at Dreamworld. I shut my eyes and waited.
Big let down, never took off, just needed to wiggle my toes by the time machine got there.
Pleased you also got the all clear.
Viv xxxx
- TonyaMMemberThat head to toe bone scan is fun isn't it. I was lying there thinking that this scan could be life changing if metastises show up.I was relieved to get the all clear. I was even excited to have degenerative changes! My GP said no more tests,just go enjoy Christmas.I went home and got into my spa with a glass of champagne to celebrate and feed my fatty liver!!Glad you got the all clear too.Tonya xx
- VivWMember
Well I had my appointment with the Onco, he said all was ok. When I mentioned to him that my GP was concerned about the 159 ALP reading he quickly looked at his computer, said it is probably from the femara? I then made the mistake of going into my body aches from the Femara and requested I go on something else. Next minute I am sitting there with a referral for a nuclear bone scan - head to toe. Got the all clear today. He seemed like I was wasting his time, all I wanted was for him to actually look at my test results, and have a discussion as to why. Anyway I don't have to see him for 6 months, he didn't give me the usual blood tests to have done prior so I will have to ring and remind him. Pleased I paid $146 for the 10 mins of his time.
Viv
- TonyaMMemberI am not too worried and it won't hurt to get checked.If all is ok then I will be celebrating,fatty liver or no fatty liver! xx
- ChixonMemberI just wanted to send best wishes for a good result from your Bone Scan on Monday. You have a great G.P... not leaving anything to chance...(someone we all would like to be by our side). Will be thinking of you...good thoughts. Chris.xx
- TonyaMMemberWell my repeat ALP test result is the same -128.So my GP has ordered a nuclear bone scan.I 'll be having this Monday morning. I'm not sure what to think but I'm somewhat anxious. I'm glad she is thorough but I sure don't want any bad news before Xmas. How are you going with this ALP saga? Tonya cx
- VivWMember
95 1Thanks Tonya, mmmm wonder why Onco didn't pick it up. My GP said when the report comes to her anything that is above normal is red on her screen and bold on a printout. Not hard to miss. From 95 to 153 in such a short term is a real worry to me.
Chat next week when you get your results.
I also noticed you mentioned Iodine, my test came back as mildy deficient, so I shall be adding nori roll sheets to my salads from now on.
Take care
Viv
- TonyaMMemberMy ALP levels have been gradually creeping up since I started Tamoxifen 4 years ago.It started out at 88,then 110 and this year it's 128.That was around June and my gp was worried enough to send me for an abdo ultrasound.This showed I had a fatty liver.This freaked me out cos my poor mum had just died from liver cancer the month before.Tamoxifen can cause fatty liver so I stopped it.I had been on it for 4 yrs.Anyway,I go for a repeat blood test next week - hopefully it will have lowered.I think your oncologist should have informed you when your ALP was first elevated.We will compare ALP situation next week.xx
- VivWMember
I have gone through my previous blood work, and noticed that my ALP was 95 in March, 153 in July and now 148 in Novemeber, my GP was quite concerned about 148, she didn't get a copy of my July report. I wonder why my Oncologist didn't mention this hugh jump in ALP levels??
This higher reading was 1 month after reduction surgery, and I wasn't taking any supplements then.
Will have lots of questions when I see him next week.
Tonya, how high are your levels?
Viv
- Blossom59Member
You are amazing Sarah 54
xxxxxxxxxx Candice