SAHMRI Survey

Wow I didn’t have anywhere near that  @arpie the expensive bits were bonescans etc ie tests

My surgeon ‘does’ do public and I would have waited about 2 weeks .... tho I had to pay $400 extra cos his hospital wasnt on my health care’s list .... and they only paid $300 of his surgery fee, leaving $3,000 out of pocket... plus the $700 mentioned + numerous other shortfalls with tests and biopsy plus the $500 not covered on my pathology fee, all totalling about $6000+.  Still haven’t received the anaesthetics fee.  Not going to chase it, either!  ;)

The problem with public surgery may be not only the wait but not having a surgeon of your choice looking after you from surgery thru treatment @arpie.

To be honest, I didn't think there  were really that many questions about women's mental health and well being at all!!

I think I'l go over it again - to see if I mis read any of the questions!!

i was lucky @Romla - my rad Onc was in the public system and told me right up there were no charges.  I only went private with my surgery to get it done ASAP with no wait ... if it happens again, I will discuss going public with the same surgeon!

@kezmusc I too would like to know longer term side effects of treatment - have been learning about them for radiotherapy the hard way.I also wish I was to,d I could blend treatment between private and public as I would definitely have done radiotherapy in the public system and saved some money as the treatment is no different.

I also put in the bit about costs of scans and numerous questions about the impact of different treatments both physically and psychologically for many years after, fear of recurrence, the inability to continue to work and how difficult it is to access super and centrelink support.  Pretty much a dozen things relating to the quality of life and for some, lack there of, after active treatment ends.  

I did suggest to them that they consider guesting on this site and they would get a lot of info on physical and emotional wellbeing.

All good points - I commented (I think - God, where has my brain gone?) on depression and that it's not just related to body image.

Do you have a support system that can help you ?

OK ... thought of a few more: