I'm a good advocate and can navigate complex systems to find options that could help both myself and others in my situation. Even if I can't spell ridiculous when all my blood has rushed to my head.
I had to work really hard to access publically funded oncology delivered through my local hospital because I vowed ten years ago that I would die in the street before I'd use the private services here again. That has opened the door for a number of people who have followed my footsteps in the last few months. I'm really proud of my efforts there which have been beautifully supported by my local hospital in general and my breast care nurses in particular. It could lead to some really good things, we will wait and see.
Now it looks like I have to put my battle undies on again. It's exhausting. Do we have to fight all the time? I don't want to be back in the paper. Really, I don't. I just want to move on, make the best of what ever time I have before I'm back in the shit and stop being the 'Cancer Woman' for a while.
I'm just about over the whole thing, but can't stand the idiocy. Why spend what I can only guess would be hundreds of thousands of dollars treating someone over ten years then go, nah, the last little bit is against the rules. If I could pay for this myself, I would. As I have in the past. I can't at the moment. It shits me to tears.
