Forum Discussion
Hi Nicole
I hear you on so many fronts. I never connected with my breast care nurse at all. I found I bonded with one of the oncology nurses so she is the one I talk to. I have also been getting counselling which is helping me to see it from everyone's point of view which is helping me cope. Mind you, I still have my meltdowns too.
It's quite possible that your husband is using work as an excuse to run away and let's face it, can you blame him? I guarantee if you could run away from it for a while you would. It's probably the one place where he has some control still. The problem is we live with this 24/7 and don't get to escape. That can cause some resentment as well.
Kids are kids and it's all about them. As much as it gawls me, I have to ask if I need help and I have to be specific. I also need to tell them that I need their help. One would have thought it was obvious but no! Mine are 19 and 21 so you would think they would be able to figure it out themselves but no. The thing is, they actually don't know what to do. After 12 months it has become their normal for me to be sick so they do take it for granted. I'm not sure how old your kids are but sometimes they need to be reminded that you are still sick and struggling. The fact is once our hair grows back and we aren't throwing up from chemo etc it is easy for them to think that you are well. It's so frustrating as it feels like we have to guide them through this as well as ourselves but they they are used to you being the rudder of the family and they don't steer well without your guidance.
As far as the friends are concerned, well you truly find out where you figure in peoples lives. It can be hurtful that others don't care tfor you the way you care for them. Choose to focus on the ones who give as much as they take.
Bc is crap! It's crap for you and everyone around you. It's so easy to lose track of what's important. Take some time for you to have some normal. Perhaps contact Otis to see if you can have a free weekend away either on your own, with your family or some friends. Take some time to have some fun. I'm not sure where you live but I'm happy to get together for a chat if you would like. Take care and I hope you are feeling a little brighter today. Love Karen xox