Post bilateral Mastectomy advice

Haven't we been thru it. I'm up and down, currently up but it can all change. Just got off the phone making arrangements for my new girls so it's all getting close....terrified and happy, wish it was now then it would be over. Humour, lost without it, check out the humour/comedy thread x

Gee girl, you sure have been through the wringer!! but your reply to mine sounds like you are today in a good place. Thats heartnening to read. Thankyou for sharing with us and for your reference to my blog, And I note we have all seemed to retain our sense of humour!! Gads, what would we do without that!!??!!

Peace and light hun :)

Hi tan, not sure if all my posts and replies can be seen? If so see response above for update, if not will fill you in soon. Great idea about taking hubby and loved the defrag analogy, taken loads of meds last hr and think k I should not type under the influence...off to my happy place xxxx

Too funny leonie and I have the perfect image in my mind. What a perfect day to make me laugh too. Terrible weekend here high temps, extreme pain not eased by anything to hand. Living in the country refused local a&e room full of Saturday night drunks. Called surgeon who kindly met me at my gp's....hows that for service? Neck, shoulders and arms look like alligator spine turns out other lymph nodes are swollen so can't turn head left or right. Have invisible! Infections causing high temps so a new cocktail of 3 more drugs to add to my growing list really my husband has has to put it all in the pc with alarms. New much stronger pain meds with double for sleep. Really he says what can I expect.....one of the most radical surgeries he has done and thinks anyone living with this pain for a month would be crying lol hope all this works or I am threatened with hospital again...god forbid. Hope your back feels better. Tell your hub that mine did his first grandson change Wearing his grandfathers gas mask! Anyhow must go meds are kicking in feel better xx

Hi Susan Hope you are felling a little better today and your pain has settled a little. At my first physio I took my husband and asked them to teach him the lymph drain massage too, so maybe you can take your hubby along to learn it too. Tell him it like a de frag for the computer, but for your lymp instead. He he he. Tell your Doctor you will be fine to go to the UK in July, it's a long time away and it will give you something to look forward to and focus on. We are going to the UK and France in July this year too, I love tripping round experiencing new things now. Before BC we hadn't even had a family holiday, now you can't keep me home. Anyway just wanted to check in and send some love and healing vibes. Xx Tan

Hi Leonie, I love your comparison to Robomaid, just love it and made me smile. My husband (an IT geek) says I have to put my processors into sleep mode and not start up again until the new processor has upgraded my server. You both sound similar.

 

I hope to go with the flow, I am trying, but still so angry right now, my sisters are all in panic mode for themselves and there daughters and its like 50 questions so hubby is now monitoring calls to keep them at bay as I simply cannot tell my story over and over.

 

I think I suffer "middle child syndrome" the one that get everything. I am sure I will start to love myself again, or I will try to. Hope your back improves and you enjoy at least part of the family celebration. all love and thanks x

Thank you Diana, I'm slowly finding my way around. Funny today when I logged on my daughter sent me my horoscope which I never read myself. It says "you are your only priority" so I am writing that in my journal along with your advice to "be kind to yourself" as a reminder to me to offer myself.

 

have a great day x

Thank you Tonya, Its reassuring to know that others have had this tightness and shoorting pains and I sure hope it swettles down. My girls were a 12 C and I have no idea what they would weigh, Doc thinks the weightloss in due to many things, obviously decreased appetite but perhaps also the factor 8 infusions and blood products, etc. Thank goodness I had enough weight in the first place to loose or I would look like a skeleton now.

 

Once the incisions are less sore and begin to heal I will head off for a fitting as it was such a drama finding something to wear just to go to docs, everything is just hanging off me making me look even thinner and to think I was thinking of loosing a couple of kilos in October LOL.

 

Thank you so much x

Thank you so much Chris, I am simply in awe that 3 weeks post surgery you were flying to Perth! I have a family wedding in the UK in July and the specialists say no its too early but we will see. Sorry to hear of your bleed, maybe that's why they say no flying.

 

I must thank you for sharing all this with me, I can't believe they don't send us out from hospital with a "what to expect sheet" but I am feeling less alone. Making appointment with a physio who specialises in helping folk like us. Had a bath last night after a month of drains and felt a little more relaxed.

 

Have a great day Chris and thank you x

 

 

Thank you so much Tanya, I tooki on board your advice and started to drink a lot more water but so far not much relief. I went to see the doc yesterday which was traumatic in inself just getting out the door, what to wear? nothing fits, on with the Berlie foam bra for a whole 3 mins then hubby had to get it off me, just too swollen and sore what a laugh in the end, inbetween more tears!

 

Full check and drain out, yuk yuk yuk almost a foot and half long! Swelling on left arm which may be due to lymp drainage, referal to physio now drains out as I am shaped like a pretzel, blood work taken as doc thinks I have abruptly gone into menopause and my low blood count may be affecting my emotions and thyroid function done due to massive weight loss which may have changed my levels (Hashimotos) Doc still thinks I am suffering PTS rather than depression as was reluctant to prescribe anti depressants so have referal to Phsycologist.

 

Still very tight and sore, drinking warm liquids feel so hot going down and cold feels freezing. But guess what? did not wake up in tears this morning. Back to Docs Tuesday.

 

So how are you today following your overian surgery? you all amaze me. thank you for being there for me too x