Forum Discussion
Kathryn_Louise_
12 years agoMember
Overwhelmed and alone
November 6th I sat in a doctors surgery and had a piece of paper sat down in front of me, "here read this, it's a little different than we expected" I could not understand any of it but my eyes went to the bold print MALIGNANT 5.5mm Phyllodes tumour, and everything since that day has blurred, rushed surgery, medication, and today I realise the enormity of the way my life will now be. Hard to even type without crying, it's all I do.
25 Replies
- LouiseTurnerIn Memoriam
Hi Lozza,
Well on the upside at least you know what you are dealing with now and they are taking some action. Be self indulgent, its a weird space to be in, but work can also be a good distraction. You have every right to have a little pity party for yourself, and yes things could be worse, but for now this is your story and you can whinge and cry because it is happening to you. Bummer about the surgeon going away, but it could be agood sign that there is no real rush. Take care XXXLouie
- Janey235MemberYou poor darling. I hope treatment today was tolerable for you and it won't be any worse than you have already been through. Kathryn it's only been a couple of months and you're still having to adjust to this 'journey'. Take some deep breaths and just breath. It will get better and you will be through it. We are all here for you and sending you positive vibes that things will improve very soon. One day at a time :) Lots of love Janey xxx
- Hazel_MMember
I know what you mean about wishing things were as they as used to be, I did that myself for some years. But you know, you have already been strong up to this point in your treatment, you can do this, you are nearly there. Sending you a big hug, hope your pain eases,
Hazel xx
- BearteggieMember
I have just read your post and feel so sorry that you are feeling so emotionally and physically exhausted. I do really hope that you have woken this morning feeling a little better and more able to approach your last radition therapy. It has been terribly hot and it must be so hard for you trying to be brave for your kids. Do you have anyone who is helping and supporting you?
I wish I could be there to give you a big hug personally. But I am thinking of you and praying that you will find comfort and a sense of calm in this storm.
Lots of love
Joy xx
- kchehadeMemberHi Kathryn I'm so sorry you are feeling like this. It must be horrible. Burn on top of burn. I can't imagine how painful that would be. hang in there. One more week to go after all you have been through. I start my chemo next week and of course not looking forward to it. I guess its better than the alternative (dying). I'll be praying for you. Love Katia
- kchehadeMemberHi Kathryn I'm so sorry you are feeling like this. It must be horrible. Burn on top of burn. I can't imagine how painful that would be. hang in there. One more week to go after all you have been through. I start my chemo next week and of course not looking forward to it. I guess its better than the alternative (dying). I'll be praying for you. Love Katia
- Hi everyone, I didn't know how to read the messages I'm sorry until now, not only that had forgotten the password and log in everything was a bit much. I'm a bit of a mess tonight, got given an extra week of radiation and I'm so sore and burnt, and the heat of 40 plus degrees has not helped. I am truly at the point of just not wanting to go for treatment tomorrow. I'm exhausted, I'm sore and I'm a wreck. No longer able to be brave for my kids, I cry so much. Wish things were as they used to be, but it never will be again.
- Hi everyone, I didn't know how to read the messages I'm sorry until now, not only that had forgotten the password and log in everything was a bit much. I'm a bit of a mess tonight, got given an extra week of radiation and I'm so sore and burnt, and the heat of 40 plus degrees has not helped. I am truly at the point of just not wanting to go for treatment tomorrow. I'm exhausted, I'm sore and I'm a wreck. No longer able to be brave for my kids, I cry so much. Wish things were as they used to be, but it never will be again.
- skarch33Member
Hi Kathryn,
Yes it's all been said here and please know that we all shed tears for you and all of us. I found the other big thing was all the info given.
As you are in a state of shock it's good to say 'can you write it down' or even, as I do take a note book and write the words you hear. Then you can re ask or go away and think and ask next time (or call).
Best of luck for your journey xx Sue
- Janey235MemberEveryone has said it all here already. I'm so sorry that you have joined us but you have definitely come to the right place. The love and support from our wonderful Pink Sisters is amazing. Any time you want to share your worries, tell us your news or just rant and rave, you go right ahead. We will be here listening and holding your hand. This is a roller coaster ride but you will be through to the end before you know it. It's almost my one year anniversary since I heard those awful words and I can't believe how quickly this year has gone and my cancer too has gone. Be kind to yourself and let yourself grieve. It's healthier than trying to be brave and keep it all bottled up inside. Take things one day at a day Kathryn. Hugs to you Love Janey xxx