Forum Discussion
Lara_O_Perth
13 years agoMember
Need some positive stories
I am a 43 yr old pediatric nurse. I have a supportive husband and two fantastic kids, daughter nearly 8yrs and son 10yrs. I was diagnosed with minimum stage 2 breast cancer last Wednesday the 26th June. I am having a lumpectomy on the 5th July and am petrified that there will be cancer in my lymph nodes. My nursing experiences are mainly in intensive care have given me mainly fatal stories about cancer and I am really struggling to remain positive. I need survival stories from those with a similar diagnosis to give me some hope. I wish right now I new nothing medical at all because my thoughts are torturing me and I am struggling to sleep even with temazepam .
Can anyone offer me some positive stories please.
Lara
xxx
43 Replies
- susie_QMemberOhhh Lara, I am sitting here in tears....can't believe this....it is unreal...I still live in Ridgley and Yes Yes I do know your mum Carole, it was quite sad when she moved and I often wonder where she went to. She may not remember me but say Hi anyway.... Gosh I still can't believe this. Where is your mum living now? Hang in there Girl, a tough time ahead but lots of positives as well.Our little "town" hasn't changed to much since you lived here, a few more houses and the corner shop near the school burnt down last year, the Post Office is now in the Grocery shop, but other than, still much the same...We live on the road just behind the school.Love and country hugsSue.
- Lara_O_PerthMemberoops almost posted same message twice
- Hi Sue, I am actually very new to the group having only been to my first get together a couple of weeks ago. Enjoyed every minute of it and can't wait for the next one. Spending quality time with others who know exactly what you are going through is priceless! The lovely Mich is our organiser and she might tell you more but basically she finds somewhere lovely for us to go on a date that agrees with us all and sends out the details via our blog for Perth ladies. I think we will be doing it once every couple of months or so. We just refer to our group as being "pink sisters" cause we all try to wear something pink when we meet and it just fits. The BCNA network makes it easy to connect with everyone and ensure that it's all inclusive as well. Nothing too complicated really! Vicki R
- Lara_O_PerthMemberThanks Chris, I am looking forward to meeting all of you too. Thank you for your generous offers of help too. Its really comforting to know there are so many lovely people out there willing to help me whom they have never met, its quite humbling. Thank you Lara Xx
- Lara_O_PerthMemberI grew up on Willowvale Farm on Circular Road in Ridgley!!! My maiden name is Cains, if you do know of my family keep in mind that I do not maintain any contact with my father as I got burned too many times to continue torturing myself by maintaining contact. My mum however is a wonderful person (Carole). Are you not in Perth Sue? Thanks for the info about your chemo, a fleecy blanket sound like a very good idea. Can't wait to know if you knew my family, what a small world. This is a welcome distraction from my current reality. Lara
- ChrisMemberHi Lara, I am so glad your scans are all clear. I really understand about your comments re being a nurse. Doctors must be threatened by this info. I think you are wise to see 2 different Oncologists, as you need someone you can ask questions of. Both my surgeon and Oncologist were fantastic, and I was never made to feel like I was asking too many questions. All my concerns were addressed and I was encouraged to ask what ever I felt I needed to know. As you said, it is better to have the answers, rather than let your mind wander at 2am with all the awful scenarios we can all conjur up. Like Vicki, I would also like to help you with anything you might need, and look forward to meeting you soon. I know how scary the thought of chemo is, but not everyone has a bad time of it. I didn't, so was very lucky. Take care of yourself, and I wish you well. Love Chris xx
- susie_QMemberHi Vicki, I am interested to learn more about the "pink sisters", can you tell me about them please. I am not from Perth but am looking for ideas to try down here in Tassie.Sue.
- susie_QMemberFantastic news about your scans Lara..yah for sure, it is such a relief and only those who have been on the 'waiting' list know this only to well. Your questions should be asked and answered without hesitation, keep on with them until you are satisfied. As for chemo....crap crap,,,,, but it is different for everyone of course, I had a reasonable time with it, a bit of nausea and restless nights, coloured my nails purple with pink dots to protect them, 3 months down the track from chemo/herceptin they are still a bit soft. Take each day as a new one with positive horizons, accept help, don't feel guilty (easier said than done). You might feel funny tingles in all sorts of places as the drugs do their job, always check if yr unsure of what it might be....have themometer handy, tissues for a funny nose and tears, hand sanitizer and something to snuggle with (if it is not to hot over there). I made myself a fleecy rug which kept me company many a time. My heart goes out to you and your family as your start this new part of THE JOURNEY. I noticed your mum is coming from Tassie,( what part?), I am from Ridgley near Burnie in Tassie. All the very best for a comfortable chemo ride. Sue
- No problem at all Lara. Just don't hesitate to let me know if I can help, like with picking you up and taking you to a treatment if need be. So very pleased to hear about your scan results. Something to help put a smile back on the dial! Keep asking those questions and getting the answers you need as well and I look forward to perhaps meeting you down the road whether it be as part of your journey or at one of our "pink sister" get togethers. oOo Vicki R
- Lara_O_PerthMemberHi Vicki,That is a truely generous offer, and I may take you up on it.At the moment my plan is that my Mum is going to come over from Tassie and look after all of us through my Chemo, I just don't know at this stage how long my Chemo treatment will be for and I doubt my Mum will be able to stay for the entire traetment as I know her husband (not my dad) won't want her staying over here for a year. So if my Mum has to go home for any reason then i may call in your offer.Thanks so so much, I will aim to make the catch up in August to meet everyone, it will just be Chemo dependant.Thanks againLara