Forum Discussion
MandaMoo
13 years agoMember
LOSER
So please bear with me. This may seem self indulgent. I have to get it out. Maybe I am not alone in my feelings.
I work hard to stay positive, to maintain some hope as it seems to be running out. I...
MandaMoo
13 years agoMember
We are all so different. It seems taboo to say such a thing as I feel like I've failed but it is how I feel in a culture focused on winning. When I break it down, I know I've done what I can here in Australia. If I lived in the US I may have many more options yet. I am comfortable with the treatment choices I have made along the way. I have always believed you can influence your outcomes and that has driven me for the last few years so it is no surprise I suppose that I am disappointed with the outcomes.
I also don't feel failed by the system because they don't know how to treat this disease, I feel angered by the spin that this disease at this stage is treatable - I truly wonder what percentage because while I know and love some miracles, too many friends are gone.
And yes, I slept we'll in a drug induced haze to alleviate this back pain (caused by coughing) - I've woken feeling refreshed. I'm not actually contemplating stopping treatment even yet but it is time to address managing my symptoms.
I actually woke feeling hopeful this morning! Hah!
Thank you.