Long Term After Effects

Oh sweetheart! I read your reply and cried! What your experiencing is what Im going through! So its NOT in my head like my Onc makes me feel!!! The burning feet, aching bones, stiff and sore when I sit too long and have to get up to walk again. Im 48 and feel 99! My tummys swollen, and all I can do is walk to try and shift the weight. If i think about it, masybe its the suger in the coke from the jimmy can ( snicker snicker) But hell, sanity as you said!

I am so glad you feel this... in the sence that im not full of BS! We ARE experiencing this! We Arnt the only ones! Tell your Onc your not alone, and nor am I. Im not on ANY other meds... no tomoxafin, nothing, just finished my treatment and went home. I do take panadol tho to curb the aches. I do have an ongoing staf infection in my bladder due to a SPC - supra pubic catheter ( basically I stand to pee as I have a tube going thru my lower abdomen into my bladder from cancer 16 yrs ago in the bladder) thetwo cancers are NOT related. The tube has been fine until I started chemo, then infection after infection in my bladder! Ive just come back from the Dr with another batch of anti's, 14 days worth this time, see if that helps! He thinks thats why I feel soo unwell... we'll see after 14 days! Im going to Soundwave in Melb at the end of this month, there is no way in Hell Im going to miss it!! Ive waited too long to see my favourite bands come over frm the states!

So sister girl.... talk to me anytime!! email me dasuechef@yahoo.com.au. Im glad we have common ground. No one can possibly understand our pain unless they feel it too. All this weed killer in our system is killing us more than our cancer did! PLEASE stay in touch Annie!!! xxxxxxxxxxxxxx