I have been on Tamoxifen for six years now, and have gone through menopause. In the past year I have started getting very bad leg pain/cramps (as well as the usual pelvic cramps/pain) - could my exp...
@Cyn Oh dear - I agree get it checked out! Who'd thought a new side effect would come along after all that time! One assumes the body has adjusted to the daily medication, but there you go! I have been on Tamoxifen for 2 years and 4 months, with 7 years and 8 months to go, not that I am counting! I suffer from what I call aching bones in the legs, up and down the legs...............it was, I thought, settling as I hadn't experienced it for a couple of weeks now but yesterday, well it made up for lost time!
As to the ovaries et cetera I also visit a Gynaecology Oncologist and he is monitoring as there are changes occurring.
To think before BC all I ever took was an occasional Panadol!
Take care xx
PS I saw a tribute to Dawn French recently as she had a change of decade birthday and they were singing the green bottles song, but for them it was 99,999 green bottles hanging on the wall.................that's how I feel about the countdown on Tamoxifen
Thanks for the feedback! I get the counting the days/weeks/years thing, and when I first went onto Tamoxifen, the medicos were saying 5years, but then they 'upped the ante' and declared best practise to be ten years on Tamoxifen...so it through all my counting and expectations out the window!!! I have fibromyalgia, and one of my specialists thinks Tamoxifen/menopause, has up the experience of the fibro. I am starting hydrotherapy this week to see if that will help. I have been cleared of anything nasty in regards to the leg pain...BC certainly can bend things out of shape in one's life can't it! But I feel lucky, as I was diagnosed early, so hoping no more trouble here.....
All the best to you on your journey...and remember, all the green bottles will eventually all fall down!!