Forum Discussion
Afraser
8 years agoMember
I have worn one for just on 5 years and finding the right one took a little time. The first was not made to measure. Wasn't at all uncomfortable but my therapist didn't feel it was sufficiently effective. My second was a custom made all in one (hand attached) made locally (Melbourne). I was never depressed during chemo but that sleeve nearly did my head in. My hand swelled, it started popping holes after 3 days, and was a cow to get on. I hurled it across the room once! Mind you, it would have been smarter to have a really close look at it and then I would have realised there was a clear bottle neck, my therapist had a fit when she examined it. It had been really badly fitted. Lesson learned, don't put up with something if it feels all wrong, at least ask! Third go, custom made German Jobst which works, with a detachable hand, is comfortable and wears phenomenonally well. Pricey way to get there, but it's been good ever since. So ask your therapist about it. It may be you are just getting used to the feeling, but it should not stop you from normal hand/arm use. 6 years after surgery is in my opinion downright unfair!! You feel you are moving on and over it, and then that strikes. I was diagnosed after 7 months, so it was just one more thing. I have a terrific therapist, my arm is very stable, affects really nothing I do and I have no discomfort at all. I work, go to the gym, travel and so forth. If you look closely you can see one arm is a bit fuller but it's not that obvious. The sleeve can get a few curious stares, I tend to refer to it as my bionic arm! Best wishes.