The more I think about this the more I feel our focus as carers must be on the non-medical side of things. Yes the medical side has a direct influence on things and we can certainly offer our opinions if asked but I realised that I ran the risk of getting in the way of the way things should work which is total trust between patient and doctor.
I'm going to limit myself to trying to deliver support in the basics such as the classic shoulder to cry on, sounding board to bounce off, researcher and facilitator if a disconnect seems to have happened.
I'd hate to see this turn into a medico bashing blog even though as I read through my initial spleen dump there were elements of that in there because as I said this is clearly counter productive in our efforts to ensure our loved ones get the best care possible.