Help I'm desperate

Sorry for being off line but I was busy re-applying for admission to the human race , apparently I had no right to attend the Sydney forum because I didn't have cancer. This just feels like a downward spiral to oblivion and I almost wish it would hurry up!

You know I heard the comment at the Sydney forum that Carers and in particularly male carers felt we didn't need our own space to talk but with Shane, me and now you I do wonder.  It isn't great to hear of your experience but only because I see fellow victims of an uncaring system. It is great to know I'm not alone but I'm not really sure how to translate that into something that can help us help those we love.

Talking about the forum, it seems the medicos understand the issues they create because of the way they treat our loved ones I'll give that to them but strartegies for dealing with them seem very thin on the ground as do the number of people able to deliver on them. In any case if there isn't a willingness to accept help how do you even bring to bear what little help there is?

I did try to take the learnings from all the great responses in blog and email and marshall them into focus, it includes the one about changing your team but also includes talking to others in the same pain space and taking ownership of yourself etc. I thought it was quite a powerful message but it just bounced off so not sure where to go from here.