FRUSTRATED
Why do our so called health professionals not advise you that you are eligible for things?? Not one of them told me I was eligible for a Care Plan/Team Care Plan. I found out thru this wonderful gr...
Forum Discussion
@Di_BCNA
My feedback would be that this info about Care/Management Plans needs to be in as many places as possible. We are all different in when this might be needed and in how/when we access info. Not everyone has a breast care nurse (I never have had any contact) and my GP was not very good with anything about this (only after I asked). I found out from reading posts on here and then googling for more info.
I guess I also never saw myself as needing something like this. Thought I could take care of everything myself. But I have benefited twice now from these Plans. First to have access to a physio a couple of months after I finished treatment. She told me to get one actually, when I first contacted her for an appointment.
Then again 2 years down the track when I wanted help with bone density issues. Again the facility I contacted told me how to organise the Plan.
This network has been my best source of information and I nearly always find things on here just when I recognise the need. There is so much learning takes place when you are first diagnosed but that learning is ongoing and I still find my circumstances and needs changing now 3 1/2 years after diagnosis. I never knew anything much about who or what was available to help with recovery, side effects etc.
I imagine there are a lot of people out there suffering because they simply don't know where to access the help they need or even that there is someone who could help. So, yes put it out there in as many places as possible. :)
My feedback would be that this info about Care/Management Plans needs to be in as many places as possible. We are all different in when this might be needed and in how/when we access info. Not everyone has a breast care nurse (I never have had any contact) and my GP was not very good with anything about this (only after I asked). I found out from reading posts on here and then googling for more info.
I guess I also never saw myself as needing something like this. Thought I could take care of everything myself. But I have benefited twice now from these Plans. First to have access to a physio a couple of months after I finished treatment. She told me to get one actually, when I first contacted her for an appointment.
Then again 2 years down the track when I wanted help with bone density issues. Again the facility I contacted told me how to organise the Plan.
This network has been my best source of information and I nearly always find things on here just when I recognise the need. There is so much learning takes place when you are first diagnosed but that learning is ongoing and I still find my circumstances and needs changing now 3 1/2 years after diagnosis. I never knew anything much about who or what was available to help with recovery, side effects etc.
I imagine there are a lot of people out there suffering because they simply don't know where to access the help they need or even that there is someone who could help. So, yes put it out there in as many places as possible. :)