I want to get in on this ranting and frustration venting too, haha! :lol:
I've started going to physiotherapy to rehabilitate my back. The sessions are $90 a pop without the plan, and there's no way I would have even thought about seeking that help unless it had been advised by someone. If I hadn't needed a new referral** and had my GP notice I was still in pain, I probably would have just kept shrugging it off as 'something I got from chemo' and chewing up painkillers.
Maybe doctors don't mention these things because when you work in medicine these are just 'next logical step's to them, such general knowledge level stuff that they assume everyone will just naturally click "Oh, of course, rehabilitation therapies, I'll ask about those" (kind of feel like adding 'said no-one ever'. :lol:)
The dot connecting has been such a mess for me in other areas too (like meeting someone before my surgery who told me they'd be my breast care nurse and not hearing from them again). I don't know. I keep getting this feeling that I'm a kid who fell through the cracks.
I love the journey kit. Those books were my rock in those first few months, but full disclosure, almost a year on and I have no idea where they are. I don't know how everyone else is, but I rely on my care team to be on the ball with what is available in regard to not only what treatments and services are available but also how they can be affordable.
I'm blah blah blah today. Carry on chums.
**...how sick are you of having to renew referrals, seriously, why do they run out in 6 months, who ever 'got better' from cancer in six months? Puts me right at rant o'clock. :dizzy: