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viking1
8 years agoMember
Food, drink and metal mouth food suggestions please!
I had my last docetaxel (chemo 6) last Monday (yeeha!) and noticed that unlike the first three rounds of FEC, mostly everything tastes yucky and metallic on docetaxel. Well, for me. I was wondering if anyone had some suggestions for food and drink choices? I know they may not be nutritious but better than not eating! Even brands seem to matter. So far I've found these foods okay:
wheatbix, soggy, with skim milk, banana and 1tsp brown sugar
vita wheat 9 grains with full cream Philly cream cheese and avocado slices
cold water and raspberry cordial
zuchinni, gem squash, yellow button squash with butter, baked potato and butter
soft cheese ... sometimes
chocolate milk shake with ice cream! (too much ice cream and milk = diarrhoea ☹)
banana paddle pop ... still metallic but not too bad
full strength natural yoghurt
Any ideas for sore throat and metal mouth?
Thank you!
wheatbix, soggy, with skim milk, banana and 1tsp brown sugar
vita wheat 9 grains with full cream Philly cream cheese and avocado slices
cold water and raspberry cordial
zuchinni, gem squash, yellow button squash with butter, baked potato and butter
soft cheese ... sometimes
chocolate milk shake with ice cream! (too much ice cream and milk = diarrhoea ☹)
banana paddle pop ... still metallic but not too bad
full strength natural yoghurt
Any ideas for sore throat and metal mouth?
Thank you!
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46 Replies
- MKitty68MemberWith the tingling, I agree with @Afraser, it sounds like peripheral neuropathy. Advise your oncologist, I was also advised to take a vitamin B supplement, which I’m still taking, along with the calcium & D ‘horse tablets’ I take daily. Damn, why do they have to make these things so damn big. They’re hard to swallow at times.
My nose would have an almost constant drip thing happening. It stopped pretty quickly once chemo was over. Try the nasal washes though, they did definitely help with the dry nasal passages. They take a bit to get used to at first but worth persisting.Sign in to react to this post - MKitty68MemberTry again;
Throughout chemo I would have regular smoothies, I first started with the pre-prepared smoothie mixes with things like beetroot, carrot, kale in with mango, pineapple, berries, etc. then I started making my own combinations. I add fresh fruit like banana as well. I make my own yoghurt, so had lots of that in there with some honey (good for sore throats) I also use coconut water, so that’s more water in my diet. I found the smoothies really helped with keeping my blood counts up, and I think likely helped the constipation. You can also add in things like dates.
It was also invaluable when I really didn’t feel like eating breakky as at least I was getting something nutritious.Sign in to react to this post - MKitty68MemberDammit, half my post above disappeared!Sign in to react to this post
- MKitty68Member@viking1 & @Romla I’ve not heard of the calendula cream. They just told me to get pure sorboline, no Vit E or anything else in it. The only other thing mentioned was moo goo. My lungs seem to have also been irritated, I’ve had a bit of a cough since chemo that’s gotten worse the past few days. They said on my last day, that if the skin blisters I can use sudocream, but no mention of anything else.
Oh yeah, the constipation is horrid! I have problems with my bowel having adhesions from past endometriosis, even the slightest constipation causes me back pain, so have done regular enemas with water throughout to keep things moving along. I found coloxyl to be good for softening things up as well though. I never tried the movicol but considered it. Chemo farts are pretty disgusting tooSign in to react to this post - AfraserMemberThe tingling is likely to be peripheral neuropathy. Let your oncologist know and see if he/she recommends anything to limit the impact. I think vitamin B helped me a bit but ask your oncologist. If your nose gets sore and crusty with bleeding (such an annoying side effect!) nose oil may help. I never knew there was such a thing but it did help cracking and soreness from perpetual blowing. Most if this clears up pretty fast when you finish chemo, but the neuropathy can be slow to improve so it's worth slowing any development if you can. Best wishes.Sign in to react to this post
- RomlaMember@viking1 just a suggestion but I have a lifetime of constipation and every pill, suppository, enemas etc the best thing that I have ever used is Movicol it works no pain no blood no haemhorroids - available in chemist no script - is used a lot by elderly people in nursing homes as they often have problems because they are bedridden but please check is ok to use in your circumstances. Also have twigged after 60 years to drink a lot of fluid - not wild about water prefer it with a teabag or coffee in it - dehydration brings on the problem for me. Also I make sure I eat 2 dried figs a day - quite like the kalamta figs on a rope plus learnt to enjoy lots raw veg eg bag salad leaves from the supermarket.Sign in to react to this post
- viking1Member@MKitty68 ... nose sores, yes, have had a running nose since chemo started, so bad sometimes that it literally drips. I look great blowing my nose with a thermometer in my mouth! Have thought about sticking two tampons up my nostrils ... light flow! This last chemo every time I blow my nose it bleeds a little. If it's not one end, it's the other! TMI but even though I take 4 tabs coloxyl daily I still need to use the numbing cream at night and in the day or tear that end too and have blood spots. I don't think a lot of people realise all the self care that goes on with this business. There's the Cancer Business and the Chemist Business! I am well into the red now. No pun intended! Also this last chemo my fingers and feet feel raw ... as if I have cut my nails too short and dragged my fingers and feet along gravel. The other night my left hand had pain the numbness then pins and needles. Eye is twitching less. Wondering if this is peripheral neuropathy with the fingers and feet? I had some temgesic for the week following chemo and leg/bone pains. Am not sure if I will need with herceptin? No harm asking. They only gave me 7. Gold? @Romla I am so glad to get positive feedback about the calendula! Glad I haven't wasted money on it. Thanks for that!Sign in to react to this post
- RomlaMember@viking1 calendula cream was supplied in the change rooms after my radiotherapy and I think that it may have helped a lot to prevent skin damage.I note they also supplied aorbolene which was not used as much and that the clinic at the end changed to another product rather than it. The mskcc says it’s great for radiotherapy side effects too and also inflammationSign in to react to this post
- MKitty68MemberOhh nose sores, yes I had those on Paclitaxel, very dry nose, I managed with the saline nasal washes, it definitely helped. Tiredness, the aches were horrid! 3 days of them. My infusion day was a Thursday, Friday i was full of energy, Saturday afternoon the aches started & stayed until Monday night. I forced myself to still walk up & down the stairs in our house, dragging myself back up. On good days I could take the dogs for a short walk, but exhausted afterwards. Still cleared the dog poo from the yard, made myself do things then rested. The neuropathy in my feet (along with my arthritis) was the worst, causing me so much lost sleep. That’s still not gone, but is so much better than it was. I dealt with that by soaking my feet & ankles in a bucket of very hot water & Epsom salts. Didn’t help it was also the start of QLD’s storm season. Med oncologist gave me sleeping pills & Targin to help.
The ‘metal mouth’ on AC for me was more like a thick coating on my mouth & tongue, dulling my tastebuds. Acidic foods & drinks were the only thing that worked.
Including the 938g they removed from my breast, I’ve now lost nearly 10kg… as I’m overweight, I sure don’t mind!
Im still struggling to eat normally a lot of the time, so expect I’ll lose more still. It’s okay, I have plenty I can loseSign in to react to this post - viking1Member@MKitty68 Geez you are certainly going through a rough patch. My chemist's assistant had throat cancer and rad to her throat, Poor lady has no saliva now and can't taste anything. She gets through a bottle of lubricating mouthwash a week and apparently her condition is permanent. ☹You hang in there, it sounds like not long to go. I'm glad you'll be with family. I bought some tubs of organic calendula from NZ to test but whatever works! Never had indigestion before chemo! @HIT wow we have three WA ppl here! I know what you mean about trying to eat healthy food and just wanting a frozen thickshake! Will worry about weight when the chemo wears off and I can eat normal foods! @TripleTea I have had salt cravings and burnt my tongue with crisps! We seem to be on the same program. I was wondering if you receive treatment in Bunbury? I need herceptin until Sept and my family is downsizing. I have been looking at moving to Australind as love the area and reasonable prices for solo female! Great year to be moving ergh...rads to get through still. @onemargie I will try those noodles! Yum! xxxSign in to react to this post