Feeling miserable!!

Hi Joh Joh,

i have suffered from autoimmune pancreatitis for 7 years before getting bc.  I had started a new drug 3 months before being diagnosed with bc as I hadn't been able to get stable in that 7 years. After 7 years of non stop pain, nausea, vomiting and the runs, I finally went into remission then low and behold, I get diagnosed with bc. I couldn't continue with treatment for the AIP whilst being treated for cancer.  I finished bc treatment at the end of June and started back on the meds for the AIP but they are increasing my risk of cancer to 85-95% so I have had to stop taking them. I have been having infusions of another drug (a form of chemo) to help with the AIP now. 

It feels like it is never ending. And the truth is that it isn't. The AIP will continue to deteriorate as time goes on.  I too suffer depression and anxiety which was only made worse by bc. Hope do I cope? I don't always. And when I don't I allow myself that. Sometimes I get so sick of bloody doctors, hospitals and tests that I just won't go for about a month. I just need a break from it all. I am currently on 41 tablets a day, so I make sure my prescriptions are all sorted so it doesn't matter if I don't go to the doctors for a month.  I try to plan something to look forward to. An outing with friends or a holiday or weekend away. I try to remind myself that there is always someone worse off and that we all are only given today. There's no guarantee for tomorrow, so I need to make the best of today. I would also highly recommend doing an oncology rehab. They take people at all stages of cancer and post cancer. It will help you to regain some of your confidence. I am  also having counselling which helps. 

Its such a long and difficult road  and I think that sometimes it doesn't really hit you until it is over and you've had time to digest it all. The other health issues just compound it. Sorry for the long post but I think it helps to know that you aren't the only one. Hang in there and take care. Karen xox