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Sister
8 years agoMember
Chemo still sucks on taxol
I'm almost halfway through my taxol cycle and so OVER it. Day 4, yesterday...I borrowed my SILs hedge trimmer and pruned some of the overgrowth from around the house - had a break halfway so didn't push myself hard. Went for a walk in the forest with the family - 3km but over 15 minutes per km so a gentle stroll, really. Came back and had lunch, then spent about 15 minutes raking the morning's prunings into rough piles, making sure I didn't push myself too much. Spent most of the rest of the day laying down because sitting or standing was just too hard and made me feel so crook. I ended up going to bed (as opposed to draping myself decoratively over the couch) at 8:30pm! Bah Humbug!
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45 Replies
- Kiwi_AngelMember@kmakm It is so lovely when U get someone that treats u like an individual and not a production line person - almost makes up for all the other a holesSign in to react to this post
- kmakmMember@"Kiwi Angel" And then when you get one that isn't like that it's such a nice experience. I count myself lucky that my breast surgeon is so caring and personable.Sign in to react to this post
- Kiwi_AngelMember@kmakm I get sick of the fact some of them just treat us like we are on a production line. They get so jaded they forget we are all scared and confused and actually do have feeling.Sign in to react to this post
- kmakmMember@"Kiwi Angel" Mine was not remotely interested. Which is not pleasant as a patient, but maybe as a doctor every patient is more or less the same and it's so it's just not pertinent, and almost certainly boring. Doesn't make us feel good though.Sign in to react to this post
- Kiwi_AngelMember@melclarity that is so tough!! I agree they don’t tell u what can happen. I have had lots of weird little things happen that I didn’t expect, and possibly even more continuing things could happen post chemo. The only reason I know it’s “normal” and I’m not alone is from this forum. One thing I found was that losing your hair hurts/is very uncomfortable which is something I never would of expected but is normal. I’m seeing my oncologist next week for my finished chemo chat so it will be interesting to see how interested she is in the list of symptoms and questions I have.Sign in to react to this post
- melclarityMember@sickgirl I see this to be more the normal than not through this treatment. I'm 2.5 years post but honestly?? Im alot better and have come a very long way, I had to learn to walk again it was that bad. I worked with an Exercise Physiologist which came through my income protection and for 2yrs I worked reduced days of 3. Only this year Ive gone back full time but to be honest its damn hard physically and I dont know how long I will maintain it. So Im working really hard now to shift a few kilos to help with fitness. I still cant walk more than 40mins without severe pain in my feet and toes. I also suffer cramping throughout my body randomly and constantly due to chemo shrinking the sheath over the muscles. Stretching exercises absolutely help but like my EP said I will never be the same or pain free. So to me its been about getting back to a life that I can be quite happy with and I think Ive done that...with a lot of compromise.
Theres so much the Oncologists dont really tell you about treatment, mine doesnt really want to know about residual effects years later because there job is to prescribe it to make you better. For me its the million dollar question having had a recurrence once.
Slow and steady honestly, and really I found I had to not beat myself up that I couldnt do anything about the side effects or inability to work eventhough I had 2 children to support. It was hard so very hard, financially Im ruined. Be Kind to yourselves everyone....xo MSign in to react to this post - sickgirlMemberPaclitaxel is rough I finished last November and there was no way I could go to work through the 2nd half of it and didn’t go back to part time work till April this year (I had 5 weeks of radiation over Xmas/new year). I’m still part time after 3 months and still get so tired. Still having herceptin until end of August and AI hormone therapy which gives worst joint pain. Neuropathy still in feet and hands just hoping it goes away eventually.Sign in to react to this post
- SisterMemberIt's probably the same as "you look really great" - how is that possible when I feel like shit.Sign in to react to this post
- Janny54MemberHang in there at @Sister. I was told the same its easier they said. Um no it ain't its just differant.
A close friend of mine only last night said how I breezed through it all. Might of seemed like that but they weren't there at 2 in the morning when I was up making cups of tea and struggling to get out of bed and walk first thing in the morning.
Keep your chin up ladies.
XxxSign in to react to this post - melclarityMemberYes my Dad kept telling me a friend of his breezed through too and couldnt understand how sick i was. Frustrating it made me feel worthless. So i acknowledge everyone some are lucky but most are not due to how our genetics are not because we're weak!Sign in to react to this post