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Chemo still sucks on taxol
I'm almost halfway through my taxol cycle and so OVER it. Day 4, yesterday...I borrowed my SILs hedge trimmer and pruned some of the overgrowth from around the house - had a break halfway so didn't push myself hard. Went for a walk in the forest with the family - 3km but over 15 minutes per km so a gentle stroll, really. Came back and had lunch, then spent about 15 minutes raking the morning's prunings into rough piles, making sure I didn't push myself too much. Spent most of the rest of the day laying down because sitting or standing was just too hard and made me feel so crook. I ended up going to bed (as opposed to draping myself decoratively over the couch) at 8:30pm! Bah Humbug!
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- @Sister, I had 15 lots of Paclitaxel. I couldn't wait to finish my dose at the hospital and go to work, even if just for a couple of hours. It did make me feel very fatigued so that I had to have a little nap in the afternoon.
I was meant to have 18 lots but my finger and toe nails started to look very strange.
I still went for walks and to twice weekly aquarobics classes. I won't let anything beat me!
I am now taking Capecitabine (Xeloda). My fingers are peeling and my feet are tender but I have so much energy. - Oh my gosh @Sister reading this makes me feel somewhat normal! I was only saying to my onc last Thursday that I don't feel like I'm over doing it until it's clearly too late and I'm completely buggered and feeling crook! Good luck! Hope you have more good days than bad
- @melclarity. I consider myself lucky with o hwve had TC as there are many chemo drugs that are tougher, like the taxol obviously - mine was bad enough - I feel for u ladies xo
- @"Kiwi Angel" Taxol is Palitaxel and Docetaxel is Taxotere, they are similar but different.
Taxol can be tricky as it causes, muscle, nerve and bone pain, I suffered all of it, so there wasnt a day where it let up. It is a very hard one to get through, you dont know how you do but you absolutely will. I have residual neuropathy in my feet that hasnt changed in 2.5 years. Just do a day at a time, that's the only way I managed it. xo - Same here. Im on paclitaxol too. Just had dose #8 with 4 to go. This has seriously knocked the crap out of me. I had a week off between #7 and #8 to give my body a break. Have suffered from day 1 with extreme muscle swelling, muscle pain, bone pain and fluid retention. Week off did me the world of good and now my dose has been reduced by 25%, so pain has reduced. Still fatigued but that i can deal with. If nothing else this chemo journey teaches you patience because all that matters is that we allow our bodies to rest as needed and be kind to ourselves because we're worth it. Xx
- I’m really struggling too @Sister. I’ve got four more Paclitaxel to go and am finding the lack of energy, breathlessness and now peripheral neuropathy all too much at the moment. So over it and I have 30 doses of radiation to look forward to! Feeling very sorry for myself at the moment but it’s difficult to stay upbeat and positive when you are feeling this way. Unless you have been through it, you just don’t get it!
- That's what I'm telling myself.
- @Sister u will get there. U r so close to the halfway hump and once u have got there it’s all downhill.
- I wish I could fast forward, too ! Wishing my time away... (It's Paclitaxol)
- This whole thing sucks big time G. I'm so sorry that you are stuck with this almighty revolting slog. All I can say is keep your eyes on the prize. The pulse is the thing! Try not to compare yourself to others, we're all so different and each one of us is an individual and responds in our own particular way. One day at a time; I just wish I could press fast forward for you. K xox
