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Linda_Adeline's avatar
Linda_Adeline
Member
10 years ago

chemo on cancelled....

After 1 session of chemo was hospitalised twice in 5 days.. heart fraction reduced an diagnosed with  a floppy triscupid mitral valve.. had double subcutaneous mastectomy.  Sentinel node had microscopic cells.. will see oncologist tomorrow for discussion of taxol for 12 weeks.. but am so so scared ... just dont feel I can risk a cardiac arrest .. bowel remains inflamed as does blurred vision an tremor an horrendous headaches .. i have trip neg... .maybe alternative methods may be beneficial... does anyone perhaps know what the % of success AC an taxol adds...as I am a health researcher as my job.. have access to allot.. but I feel ... just absolute fear of chemo.... dont think will do anymore chemo.. so confused... afraid...an surreal  ??????

  • Cook65's avatar
    Cook65
    Member
    10 years ago

    Hi Linda

    Like you I was dreadfully ill after my first chemo (TCH) and ended up in hospital for 5 days. The thing is, I told the oncologist every single side effect. They changed things for each of my 6 treatments. It was amazing all the things they could do to help, including changing the actual chemo I was having. Tell them all of your concerns and all of the issues you have had so far. They should be able to offer you suggestions and alternatives.good luck. Karen xox

  • Anonymous's avatar
    Anonymous
    10 years ago

    Hi Linda, it is like being in a scary fog the first days, and I can understand your concerns about your heart. A friend of mine was monitored very closely due to her heart. She had a reaction to her first chemo, and it was stopped immediately with oncologist there on site straight away to treat her. She was in very safe hands there. My advice is to ask lots of questions and take a support person with you to each treatment. Be ocal, and discuss your concerns with the docs and nurses. Sending you a big cuddle, Trace ??????

  • lisboy's avatar
    lisboy
    Member
    10 years ago

    Hi Linda

    I really feel for you, you have had a terrible time of it. I can understand your concern re the chemo and the  heart especially with regard to AC. But, as a triple negative(I am too) we are told that the best practice treatment is the AC taxane combination( taxol or docitaxel etc). I would raise all of your worries with the onc re the taxol. In my experience, the taxol is far less harsh than the AC but not sure of the impact on the heart. It is a difficult situation but the Drs must have an approach as floppy mitral valves are not unusual. 

    In terms of added percentage of longevity, I am unsure and I think it is another question for the docs. I do know that it is recommended especially with micromets. It sounds like you are really sensitive to the chemo with the blurred vision and the inflammation. I really hope the Drs can come up with a treatment plan that hits the bc without compromising your heart.

    take care 

    Lisaxx