BCNA's Helpline refocus - some changes being made to the Helpline
BCNA's Helpline refocus I received this email last night and assume that all members received it - but just in case some haven't received it, I'll put it here for everyone to read and comme...
Yes, @Locksley, @"Annie C", @iserbrown, @June1952, @MicheleR, @Julez1958 - I hear you! i hope the Mods/CEO do.
It is SO important for those on the Helpline/Member Support Team to have a full understanding of that our members actually go thru - and the Cancer Nurse would know that from first hand experience with BC survivors (and families of those who's loved ones have passed away) every day.
Like you, living regionally, we just don't have ready access to Breast Care Nurses, who are usually in the closest 'big town' and don't always get back to you within a timely period. I experienced this myself as there are no BC Nurses in my town. Even tho I haven't 'used' the Helpline yet - it is a great comfort knowing that it is there, with a qualified BC Nurse on board, permanently, I hope.
Hmmmm .... WHY even CHANGE THE NAME from Helpline to 'Members Support Team'? HELPLINE is instantly recognisable - short & sharp - I also have been advocating for a couple of years now, that the Helpline Phone Number should be permanently included on the Blue Banner at the top of EVERY PAGE - to make it even EASIER for members to find (without having to go back to the 'Community info/BCNA Website'! I even did a Mock Up of how it would look - and I think it looks TERRIFIC! What do you think?
VERY INTERESTING - there was similar outrage at the attempted change of the Name of The Beacon to "The Pink Lady" back in 2018 - with very similar comments about members (ie those directly affected by BC) not being included in the decision making of the name change and HATING the new name for an assortment of reasons! So many of the comments on THAT thread are SO relevant to these current changes being made now to the Helpline & Counselling services - also without consultation with members! .... A survey (finally) put to members (page 16) resulted in The Beacon RETAINING it's name to this day! YAY for People Power! ... You can check it all out here: https://onlinenetwork.bcna.org.au/discussion/17867/disappointed-in-the-beacons-name-change/p1
The facts are - that up to 30% of us BCNA members have a chance of developing Mets at some stage in the future (the GOOD NEWS is that 70% WON'T tho) - and I know that I would be seeking my comfort and counselling from HERE rather than elsewhere.
