I had chemo before my surgery, and had to push for contact with a BC nurse. Having said that, when I finally did see her, she suggested I should see a lymphoedema physio before surgery for baseline measurements. The best thing she could have done! I did have to go to a private therapist, as there was no way that I would have been seen in the public lymphoedema clinic in time.
At about 4 weeks post surgery, I saw her and happened to mention something about a general achiness in my arm. She immediately suggested that I make another appointment as soon as possible for another measurement. At that appointment 2 weeks later, I'd gone from 0.5cm difference in arm measurments, to a 7cm difference. I went in to my first sleeve that day. I have since moved on to custom made garments. It's simply part of my life. With the garments and regular lymphatic massage, my arm has remained stable for the last 3 years