Forum Discussion
CellyK
9 years agoMember
Anti-werewolf pep talk?
Hello lovely ladies!
Calling for a pep talk! I'm about to start taking my tamoxifen for the first time. It feels like a big step - such a long-term change / commitment (10 yrs+). Aside from the 'no going back' aspect, it's the drop in oestrogen that freaks me out.
Being peri-menopausal I was already getting those signs - like growing a goatee :o dry skin, monthly migraines, etc etc. Now that my lady hormones with take another steep dive - what the hell kind of werewolf am I going to turn into?!
I'm single and, while I don't need the validation of a man, it will be nice if they don't actually scream and run away. Particularly under a romantic full moon!
Calling for a pep talk! I'm about to start taking my tamoxifen for the first time. It feels like a big step - such a long-term change / commitment (10 yrs+). Aside from the 'no going back' aspect, it's the drop in oestrogen that freaks me out.
Being peri-menopausal I was already getting those signs - like growing a goatee :o dry skin, monthly migraines, etc etc. Now that my lady hormones with take another steep dive - what the hell kind of werewolf am I going to turn into?!
I'm single and, while I don't need the validation of a man, it will be nice if they don't actually scream and run away. Particularly under a romantic full moon!
59 Replies
- AllyJayMemberI'm 59 and osteoporotic and get my prolia for $38.00 and some odd cents. I have had the same rib fracture without a fall, eight months apart. Once from having a scan done on my stomach and again upon awakening from bilateral mastectomy. Presume they were moving my on or off the table. @melclarity , I was told that although under 70, I qualified due to the fractures sustained without force.
- CellyKMemberUpdate: Well I had my first tamoxifen pill last night. Nothing, not even a stray fart. But I guess it takes a while to 'get going' in your system (?). I did wake up at 5 - but that was more likely because I was curious to know if I felt different, than from actually feeling different. And it is a new moon, maybe in 2 weeks when the moon is full, I'll start scratching at the back door at 3 in the morning.
@InkPetal - having less hair in Tazzy, sounds okay - isn't that the trend now? Is that from hormone or chemo treatment tho? - InkPetalMemberMy experience hasn't been positive, but I'm in party no-new-hair. If anything my body hair has become thinner. Don't read this next sentence if you're queasy; I have the shortest pubic hair now, oh my gosh it gets to like 5mm strands and stops, it's like do I even shave what is the point hahaha. So who knows what the heck is going to happen :joy:
- melclarityMember@Romla and @Primek I had lengthy discussions with my Oncologist and Pharmacist, I do not qualify, I exhausted it believe me, osteoporotic or not under 70 there is no reduction that's men and women, I was furious at the time, so I looked extensively into it. My bone density scan however was free due to having lumbar stenosis and some other things prior to chemo. Never had any fractures and have a health care card too uuugh LOL. Unless that is something new that has come in, my Pharmacist if not the Oncologist would be aware of it, so unsure.
I take Aromasin in the morning, Ive tried it every which way, night too makes no difference. Honestly I don't feel any major side effects now, so I take it like a lolly LOL. Not a big deal. xx - primekMemberMy understanding was it was on the pbs @melcarity if you were identified as osteoperotic. If osteopenia (close but not quite like myself) it doesn't qualify. The over 70 is for women who have osteopenia and were at higher falls risk. I think you need to discuss with your oncologist.
I'm having my bone density done this week to see if I am now in area of osteoporosis.
https://m.pbs.gov.au/industry/listing/elements/pbac-meetings/psd/2013-07/denosumab.html - RomlaMemberIf you are osteoporotic , found to have had a fracture linked to it and yet under 70 you qualify for the PBS price of $38 for Prolia. I'd be talking to my onc @mel clarity worth a shot anyway.I agree it's unfair to pay the full price esp as cancer treatment can cause havoc with our bones. Do you think @melclarity there is a better time of day to take your AI tablet from point of view of joint pain ?
- melclarityMemberI take Prolia injections twice a year, yes it lists all sorts of side effects, Im into my 2nd year on them now and apart from feeling a little off for a few days I have had no side effects. I also do stay on top of my Dental Health, but there's never been an issue. Unfortunately Prolia are only free if you are over 70 years of age. STUPID!!! So my injections cost $275.00 and I get $153.85 back from my health fund, so not too bad really.
Weight bearing as Romla has said is most key...my bone density after chemo was shocking! with Osteoporosis in my lower back and neck. I don't anticipate for the next bone density to be worse at all, so will be interested to see with everything Ive done as to how things are looking now. I'll be honest I wouldnt have known I had Osteoporosis, it's silent...I dont even think about it, there's nothing that I don't do.
Vitamin D is the only way to boost your levels thats why its generally the only thing the Oncologist gets you on immediately post chemo.
I'm 5.5 years now on combined Tamoxifen which stopped working at 4yrs and I had a recurrence and 1.5yrs on Arimidex switched to Aromasin and honestly, my symptoms now are very bearable. I don't put any thought into any of it now...the only focus I really have is hmmm well Im doing all the things theyve said to do..so I focus on other things such as enjoying life and making plans. :) xx - RomlaMemberUnfortunately Prolia only on PBS if you have had a fracture already and gather very expensive if not . However there are bisphosphonate tablets you can take but need to be careful you stay upright for 30 minutes after taking to avoid an ulcer in gullet. Also regardless Prolia or bisphosphonate tablets serious dental can cause osteonecrosis of the jaw - eg root canals , extractions. Make sure you take good care of your teeth and they are sound before you start bisphosphonate or Prolia. There are things you can do as you know to promote bone density like weight bearing exercise , Calcium/ Vit D tablets ( I take 2 Caltrate bone health daily). etc etc but whilst on arimidex hope you have regular bone density checks . Your medical oncologist should be monitoring this for you and providing guidance - diet and sunlight may not be enough on aromatase inhibitors I'd be talking to the onc who put you on arimidex who has specialist knowledge . There is an osteoporosis site online also I'd be looking at their suggestions too- it all helps.
- I had a bone density scan yesterday and as much as I can make out from the scan, looks like my results have slipped back a bit from 12 months ago. That is my main concern with Arimidex as I also had some osteopenia in my left hip which I had managed to turn around a little before breast cancer hit. I'll be visiting my GP shortly to see whether I need to consider Prolia (or similar) at this stage. Good news @Romla that your GP feels Prolia shouldn't have too many side effects. I have a lot of years ahead of me and can't afford to have my bone density slip back by a couple of percent a year!
- RomlaMemberWas the same for me -@Hopes_and_Dreams walked past the Femara for several days and just kept the Prolia in the fridge for a week then garnered courage started both.Been on both 3 weeks - noticed joint aches I didn't have before after sitting down for a while but fine once I start moving.A talk with my GP about Prolia was very helpful - he said there were side effects with Femara but that Prolia would be fine. Have yet to bay at the moon and my husband has not taken up residence in the shed so thus far is ok.Will say however am still nervous as am osteoporotic at the outset and Femara thins bones - hopefully Prolia will prevent fractures.