Forum Discussion
Delos
7 years agoMember
Yeah, i knew I was 'not right' before both diagnosis' too. For months.
I have to keep reminding myself of this.
To stay confident and trust my own instincts.
But at 2am, when you are alone in your own head, it's difficult.
I opted out of the colonoscopy as a simple change in diet got rid of the symptoms, I think I was just easily led into that worse case scenario head space.
But that high risk factor plays heavily on my mind, I was mammogram scanned regularly from age 40, all clear for 3 years, then... BAM! Both breasts, multiple lumps, both nipples with Padgets. It was so much at once.
When I had my mastectomy and immediate reconstruction, they were not expecting my core muscles to have so much radiation damage(from the treatment 20 years earlier) , they were shocked! I was called 'The Radiation Girl' as they removed radiated material, and replaced it with other radiated material.
I am grateful they did, as I do not think I would have coped waking up from surgery to find the reconstruction had not happened,
but at 2 am this morning, I woke in a panic, wondering what cancer may suddenly appear in that relocated core muscle. There are no stats on this stuff. I just have to try to put it out of my mind. No mammory glands means no mammogram.
But you are right, what else can we do?
I just gotta trust the doctors and hope the tamoxifen is low impact/high success.
I have to keep reminding myself of this.
To stay confident and trust my own instincts.
But at 2am, when you are alone in your own head, it's difficult.
I opted out of the colonoscopy as a simple change in diet got rid of the symptoms, I think I was just easily led into that worse case scenario head space.
But that high risk factor plays heavily on my mind, I was mammogram scanned regularly from age 40, all clear for 3 years, then... BAM! Both breasts, multiple lumps, both nipples with Padgets. It was so much at once.
When I had my mastectomy and immediate reconstruction, they were not expecting my core muscles to have so much radiation damage(from the treatment 20 years earlier) , they were shocked! I was called 'The Radiation Girl' as they removed radiated material, and replaced it with other radiated material.
I am grateful they did, as I do not think I would have coped waking up from surgery to find the reconstruction had not happened,
but at 2 am this morning, I woke in a panic, wondering what cancer may suddenly appear in that relocated core muscle. There are no stats on this stuff. I just have to try to put it out of my mind. No mammory glands means no mammogram.
But you are right, what else can we do?
I just gotta trust the doctors and hope the tamoxifen is low impact/high success.