Forum Discussion
https://www.youtube.com/watch?v=NkhDD5uynzU
Marisa Weiss, M.D., Breastcancer.org chief medical officer, spoke with Lynn Jeffers, M.D., MBA, FACS, and Anne Peled, M.D., about their experience as dual citizens — both doctors and breast cancer patients — for a Breastcancer.org webinar. All three women have had breast cancer, which has influenced how they help and support their patients with firsthand knowledge of a diagnosis and treatment.
“I want to remind you that you deserve the best care possible. I understand the fear, stress, and doubt that accompanies a serious health issue like cancer and how hard it can be, sometimes, to trust in the treatment you’re receiving and the doctors you’ve chosen to take care of you,” said Dr. Weiss. “Finding empowerment through knowledge, clarity, and a supportive community is why I started Breastcancer.org over 20 years ago.”
In the webinar, Become an Empowered Patient: Advice from Doctors Who Had Breast Cancer, the doctors share what they learned during that transformative chapter in their lives and provide tips to encourage everyone to take an active part in their own care. They discuss ideas for how someone can improve communication with their doctors, prepare for appointments, be involved in shared decision-making, and advocate for their needs.
They answer your questions and discuss what they learned when they went from the role of healthcare provider to patient, sharing their unique perspective and actionable tips. You’ll hear how to:
- better prepare for and get the most out of medical appointments
- improve your partnership with your doctor and care team
- feel more confident in shared decision-making about your care
- become your own best advocate when managing your health
There is some very constructive information - validating what we often tell newbies too .... to take someone with them to their appointments, write (legible) lists of questions (I do mine on the computer & print them out.) Make sure you TELL them all your side effects & fears ....
Validating that if you are not happy with your care, that you CAN choose to see another Dr/surgeon/Onc/Rad Onc ....
Validating Scanxiety fears (my '4 years from detection' MG & US are in a few weeks ....)
Making sure the Medical Team knows what you want long term (not just short term, ie getting thru the treatment) eg getting to your children's University Graduation even if years down the track, or their weddings ....
Definitely worth a watch, cos, like us, they've stared down that barrel of fear, too & have been surprised at how it has affected them personally - even tho they'd treated hundreds if not thousands of patients with similar diagnoses.
And here are more videos from the same group - breastcancer.org
https://www.youtube.com/c/breastcancerorg/videos