I think the next time I see my onc I'll ask her if there is discussion around telling patients about long term side effects of treatment & hormone therapy. Has it been studied? Would being told about the possibility of living with permanent pain/exhaustion when you're prescribed chemo/hormone therapy for 10 years actually change anyone's mind before they do chemo or take the pills? I'd say a small number, but the overwhelming majority would take the doctor's advice and go ahead with treatment.
I remember my first onc casually referring to "the bone pain" I'd be having when we talking about something else. I was startled and queried it. Now I wonder if it wasn't deliberate, that she was introducing it early to prepare me. Hmmm...