Forum Discussion
How fortunate you ladies are to be able to take courage from cancer marker readings. I suffer from a fairly rare form of inflammatory breast cancer and my treatment over the past 7 years has been complicated by a CT scan showing nothing and blood tests showing nothing on the cancer marker reading.I have just had a fresh outbreak (my 6th) and have been put on Xeldoa which so far is going well. I am on to my third rotation and the only real worry is hand and foot sydrome which so far is not too severe. I believe I am on Xeloda long term..my oncologist says patients can be on it years if they don't have too many problems.Because I have trouble with cancer marker readings I am
forced to have PET scans at around $1,000 a time to get any satisfaction...and NO the government does not give a rebate. I have one coming up AGAIN IN June which is hard when this is the only way my cancer can NOW be monitored. Recently my HER2positive turned into HER2 negative with many new drugs failing along the way...thank God for Xeloda as already under arm lumps have vanished.