Triple Negative Diagnosis
Hi there, I'm new to this community...and the cancer journey. I am a 39yo school teacher with two beautiful young children (4 and 2yo). I am halfway through five months of chemo with surgery and radio...
Forum Discussion
So sorry to see you here, @Elise_Rim - joining our elite little group. We have a wealth of knowledge and first hand experience in most things Breast Cancer ......
Whilst I am not Triple Neg ... I do know just how much any BC diagnosis can affect you - and well done YOU for advocating so well for yourself & getting checked out sooner than later. xx This disease can muck with your head even more than your body - so if you find yourself getting stressed .... see if your Breast Care Nurse or GP can put you onto a good counsellor to talk things thru xx. Don't let it become a bigger problem.
I am sure that other TNBC members will jump on soon & reply xx
We have a 'Young Women"s group that you may like to join - it is totally private & you can raise any issues you want to in there .... just click on the Groups (in the blue banner above), find the Young Women's group & click 'Join' ....
You can also search the forum for other threads with TNBC mentioned ..... (I've done it for you and the results are below - with the most recent threads showing 'first' .....
https://onlinenetwork.bcna.org.au/search?query=triple%20negative&sort=-dateInserted&scope=site&source=community
Dr Liz O'Riordan (a UK Breast Cancer surgeon who has had BC twice has a very good Blog - even tho a surgeon, she found that what SHE'd been telling her patients about surgery & was totally different to her own experience - she was also gobsmacked at both the mental and physical hit she took after her own diagnosis & treatment & has documented it in her blog.) :( Start from the 'bottom' (2015) of page 3 and work your way up thru the 3 pages of Blog .. https://liz.oriordan.co.uk/blog/page/3/
She also puts up a LOT of good information on her Instagram Page & is well worth reading too.) She recently mentioned a vaccine for TNBC that has been going thru trials in the UK & USA and looks VERY PROMISING .... let's hope they have trials in Aussie too, soon. Mention it to your Onc. xx. The more Oncs asking/advocating for it, the better the chance of trials occurring soon. You can see the links to her Instagram site in the search link above.
Listening to Charlotte Tottman's podcasts may also be of use to you - a breast cancer psychologist who was diagnosed with breast cancer (I believe it was during lockdown.) She has been on a few 'webcasts' on BCNA too, prior to her own diagnosis.
Charlotte Tottman - Series 1 Podcast: https://bit.ly/3oD0S0C
Charlotte Tottman - Series 2 Podcast: https://onlinenetwork.bcna.org.au/discussion/25505/season-2-podcast-series-what-you-don-t-know-until-you-do-with-dr-charlotte-tottman/p1?new=1
Sorry to bombard you with 'stuff' .... but knowledge is power xx
Also check out these other areas in the forum - where yes, we even have some fun & laughs (god knows we need them!). We chat about our pets, garden, art & craft & many more topics that are not BC .... jump onto any area that you like the look of!
https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-our-new-members#latest
take care & all the best for your continuing treatment xx
Whilst I am not Triple Neg ... I do know just how much any BC diagnosis can affect you - and well done YOU for advocating so well for yourself & getting checked out sooner than later. xx This disease can muck with your head even more than your body - so if you find yourself getting stressed .... see if your Breast Care Nurse or GP can put you onto a good counsellor to talk things thru xx. Don't let it become a bigger problem.
I am sure that other TNBC members will jump on soon & reply xx
We have a 'Young Women"s group that you may like to join - it is totally private & you can raise any issues you want to in there .... just click on the Groups (in the blue banner above), find the Young Women's group & click 'Join' ....
You can also search the forum for other threads with TNBC mentioned ..... (I've done it for you and the results are below - with the most recent threads showing 'first' .....
https://onlinenetwork.bcna.org.au/search?query=triple%20negative&sort=-dateInserted&scope=site&source=community
Dr Liz O'Riordan (a UK Breast Cancer surgeon who has had BC twice has a very good Blog - even tho a surgeon, she found that what SHE'd been telling her patients about surgery & was totally different to her own experience - she was also gobsmacked at both the mental and physical hit she took after her own diagnosis & treatment & has documented it in her blog.) :( Start from the 'bottom' (2015) of page 3 and work your way up thru the 3 pages of Blog .. https://liz.oriordan.co.uk/blog/page/3/
She also puts up a LOT of good information on her Instagram Page & is well worth reading too.) She recently mentioned a vaccine for TNBC that has been going thru trials in the UK & USA and looks VERY PROMISING .... let's hope they have trials in Aussie too, soon. Mention it to your Onc. xx. The more Oncs asking/advocating for it, the better the chance of trials occurring soon. You can see the links to her Instagram site in the search link above.
Listening to Charlotte Tottman's podcasts may also be of use to you - a breast cancer psychologist who was diagnosed with breast cancer (I believe it was during lockdown.) She has been on a few 'webcasts' on BCNA too, prior to her own diagnosis.
Charlotte Tottman - Series 1 Podcast: https://bit.ly/3oD0S0C
Charlotte Tottman - Series 2 Podcast: https://onlinenetwork.bcna.org.au/discussion/25505/season-2-podcast-series-what-you-don-t-know-until-you-do-with-dr-charlotte-tottman/p1?new=1
Sorry to bombard you with 'stuff' .... but knowledge is power xx
Also check out these other areas in the forum - where yes, we even have some fun & laughs (god knows we need them!). We chat about our pets, garden, art & craft & many more topics that are not BC .... jump onto any area that you like the look of!
https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-our-new-members#latest
take care & all the best for your continuing treatment xx