Also I have noticed a lot of people who access the online group are victorians. Obviously it is encouraged in victoria. I would like to see a larger number of people with ABC accessing this website to give us a stronger voice.
It would be good if Breast Care Nurses were to receive more specialised training on the needs of people with ABC. I found the role often focuses on delivering information that is easily accessable on internet or bcna/cancer council. Following up people with ABC over the longer term is important, not just when you are in crisis or treatment phase.
Chemotherapy sessions and many days/weeks in hospital left me disappointed in the delivery of connectedness with health professionals.