Time for a new treatment

We are being a Voice just by creating awareness and getting people stirred up.

An entry could be done for the inside story of the Beacon once ideas are summarised and continue to create awareness in the wider Advanced Breast Cancer community. Also a lot of Breast Care Nurses read these stories so that would target them too.

It would be good to gather specific things we want targeted which Amanda outlines in her entry above

'Particular consideration will be given to projects that are innovative and non-duplicative of other efforts and have the potential for national application. '

We need to check where the 'Holes' are in the Research. 

I would like to see National Data collection for Advanced Breast Cancer that delivers information useful for future planning, research, and knowledge of treatment results including lifestyle choices,location mets,receptor types,treatment,details of disease progression etc. I spent months on internet trying to get some of this info and it is just not out there. (The founder of this online group had the vision to have national data collection for ABC - it can be read in her entries)

There are 'High flyers' in our community who either live a lot longer than expected or are even cured. No one speaks of the cured. Why are we not studying this group to see if there are any trends. However detailed info is needed. 

I would like to see nutrition education made an integral part of treatment approach.I lost 12kg initially in my initial treatment due to the high grade tumors and chemo etc,and was encouraged to focus on high calorie foods to regain and maintain weight. Formal studies in Australia need to be done to show benifets of wholefood,organic diet as outlined in the Gawler foundation. Basic sense tells us our bodies need special nurturing with nutrition thru this grueling treatment that our bodies are put thru.

Just how much drug trials are going on in Australia or World for Advanced Breast Cancer. I would like to see an annual paper put out summarising all the current treatments available whether they are goverment subsidised or not. I want to be educated on what treatment is out there and make informed choices. Although I take all my questions to the oncologists I come away not gaining the information I am looking for.  I too have  children that need my love and care and I just dont have the time and energy to be consumed by this unending search for information.