well it's all go. i sent an email to Robin Anderson at peter mac a researcher into getting better therapy etc for advanced BC and she sent this reply i didnt know how to attach it so copied it out. i am putting it here and hope others will write and lobby these people the more we write to and hound then we may actually get the ball rolling.
Dear Fran,
Thanks for your email, My research at Peter Mac is focused on developement of better therapies for women with advanced Breast Cancer.
Our main sources of funding are from N.B.C.F and N.H.M.R.C.
I dont feel N.H.M.R.C will listen to your protest and request for more help and recognition of advanced Breast cancer , But N.B.C.F always listen to advocates , so lobbying them could be worthwhile.
Also The Victorian Cancer Agency has research grants focused on different cancer streams , so impressing the urgency of more research into the plight of women with advanced Breast Cancer and better therapy developement would also be a help.
Also Maybe lobby send letters to Lyn Kosky as she has been speaking out about breast cancer since her journey recently, you could all push to see if she would be willing to atake a role in advocacy for more research funds.
just a few sugestions if i think of more i shall email you again .
GOODLUCK WITH THE ENDEVOUR ,
and GOODLUCK TO YOU ALL, and POWER TO YOU ALL.
Yours Sincerely.
Robin Anderson