· Invasive lobular breast cancer is often occult on mammography & therefore more difficult to diagnose (i.e. white on white so not readily visible on the MG)
· There is an increased risk of lobular breast cancer occurring in the contra-lateral beast (i.e. other breast - something to be aware of! Not sure I'd been advised of that previously!)
· Breast density has been discussed by BreatScreen NSW and no decision as yet has been made regarding disclosure to women as there are is no current evidence based guidelines as to what is recommended with different percentages of density (She basically said they couldn't decide 'which density of breasts' should be advised of getting an ultrasound - not wanting to scare women unnecessarily or give them additional expenses - which I thought was pretty stupid ...... Obviously those with the most dense breast tissue should be advised to have an ultrasound or other scans - as the cost of an ultrasound is way cheaper than the surgery & all our other expenses experienced since diagnosis!) In my opinion, those with mid - lesser dense breast tissue should also be cautioned that their condition may compromise their MG results and give false confidence in being clear!)
· With symptoms related to taking an aromatase inhibitor (eg Examestane) Glucosamine has been found to help aches & pains
· For hand weakness, possibly seeing an occupational therapist who specialises in hands would be helpful
