Forum Discussion
arpie
7 years agoMember
That's a shocker, @Sister & @Blossom1961 - that would almost count as malpractice! :( Sounds like yours was in the wrong job, @Sister
Even I jumped at the sound of the gun going off the first time .... tho at my most recent one in Dec, the lady Dr 'set it off' to let me hear it first, before administering it. She must have had at least 5+ stabs at different angles (thru the same hole!), to make sure she got a lot of tissue - as the first needle was too fine & didn't pick any tissue up. I expect that was due to my dense breast tissue? She had to then use a wider needle for the rest of the stabs. I have a permanent scar from this one!!
Gosh - I've NEVER had ANY results the same day or the next day. It has always been a minimum of a week's wait for me for all my tests/scans/biopsies etc
@lrb_03 - I think I was more pissed off than upset, tho as it was your 'first attendance request' - totally understandable & just really bad timing :( It really annoyed me that there didn't appear to be any communication (as you say, cross referencing) between the various agencies, which still amazes me. And the fact that you raised it with them & I've raised it with them & I bet hundreds if not thousands of others have raised it with them - and yet it STILL isn't being done!
My surgeon actually said that I no longer qualified for Breastscreen now, for at least 5 years (as I'll be getting checked yearly for 5 years) - so in hindsight I was surprised that he didn't make contact with them on my 1st appointment in Jan 18! Mind you, it was his first day back from holidays ....
I also asked about Mets & the CTC tests (Circulating Tumour Cells) - but I will go over the conversation again & take notes (I recorded it) so I 'get it right'. He DID say that he believed the % going on to get Mets was LESS than 30% ..... and that many of those are detected 10+ years later, even 20 years after diagnosis/treatment (as is the case with my Uke buddy - and hers is a slow growing one, so she will die 'with it', not 'from it' - not unlike a lot of men and prostate cancer - they reckon a large number have it 'when they pass' but are not affected by it and is not the cause of death.)
He DID mention that ILC was the 'sneaky one' and the need to be vigilant re possible Mets symptoms. Basically - he said - if you have any unexplained aches/pains/whatever for a 2 week period+ .... get it checked out.
Even I jumped at the sound of the gun going off the first time .... tho at my most recent one in Dec, the lady Dr 'set it off' to let me hear it first, before administering it. She must have had at least 5+ stabs at different angles (thru the same hole!), to make sure she got a lot of tissue - as the first needle was too fine & didn't pick any tissue up. I expect that was due to my dense breast tissue? She had to then use a wider needle for the rest of the stabs. I have a permanent scar from this one!!
Gosh - I've NEVER had ANY results the same day or the next day. It has always been a minimum of a week's wait for me for all my tests/scans/biopsies etc
@lrb_03 - I think I was more pissed off than upset, tho as it was your 'first attendance request' - totally understandable & just really bad timing :( It really annoyed me that there didn't appear to be any communication (as you say, cross referencing) between the various agencies, which still amazes me. And the fact that you raised it with them & I've raised it with them & I bet hundreds if not thousands of others have raised it with them - and yet it STILL isn't being done!
My surgeon actually said that I no longer qualified for Breastscreen now, for at least 5 years (as I'll be getting checked yearly for 5 years) - so in hindsight I was surprised that he didn't make contact with them on my 1st appointment in Jan 18! Mind you, it was his first day back from holidays ....
I also asked about Mets & the CTC tests (Circulating Tumour Cells) - but I will go over the conversation again & take notes (I recorded it) so I 'get it right'. He DID say that he believed the % going on to get Mets was LESS than 30% ..... and that many of those are detected 10+ years later, even 20 years after diagnosis/treatment (as is the case with my Uke buddy - and hers is a slow growing one, so she will die 'with it', not 'from it' - not unlike a lot of men and prostate cancer - they reckon a large number have it 'when they pass' but are not affected by it and is not the cause of death.)
He DID mention that ILC was the 'sneaky one' and the need to be vigilant re possible Mets symptoms. Basically - he said - if you have any unexplained aches/pains/whatever for a 2 week period+ .... get it checked out.