Forum Discussion

annmaree872's avatar
9 months ago

Palb2

Hi everyone this is my first post 
I have been through cervical cancer stage 3 with chemo and radiation now tested positive to palb2 gene and have been given options my mind is muddled and I’m nervous about going through such a big procedure has anyone been through this if so any advice would be appreciated 
  • Hi @annmaree872
    When you refer to “procedures” are you including a double mastectomy?
    I had a double mastectomy with reconstruction and it was a big decision as well as (2) big surgeries.
    I found that the private group on here “ Choosing reconstruction” very helpful - ladies who have been there post stories and photos - I did also call the BCNA helpline and talk  to my ( female) GP as well as a friend of a friend who had a double mastectomy and reconstruction and that was also very helpful.
    There  are different types of reconstruction and some  ladies stay flat - there is a private group on here for that  too “ Flatchat”.
    The helpline can join you up if you  have issues.
    With all my medical decisions I asked my Dr “ what would you do if  it was you”? Or if the Dr was male “ What would you advise your sister/mother/aunt in these circumstances?
    Take care.
    🌺

  • Mez_BCNA's avatar
    Mez_BCNA
    Community Manager
    Hi @annemaree82 - sounds like you have had good support and suggestions above. We would like to also provide you with information we have in our My Journey resource and website. It must be difficult navigating these decisions and we hope the information is helpful. 

    Feel free to reach out to our Helpline for any further targeted information that may help 1800 500 258
  • Hello @annmaree872 and welcome.  As you have not had any response yet I have sent you a private message - look for the little envelope to the top right of the screen next to where you log off.