Hello I am in Hobart Tasmania. I am 50 years old in the last week I have gad a Mammogram a Ultrasound and Core Needle Biopsy. They have found several cysts which are just that cysts but a few that are different. One of those they took 3 samples out of quite an uncomfortable experience I now have to wait until Tuesday for the results. I am so nervous i do have a fairly strong family history from both mum and dad side...I quess i am here for someone to talk to about what could happen next. Hope its ok to do that. Cheers

Ditto to all the above messages and best wishes from jennyss in Western NSW

Thanks everyone yes its hard to wait for results but it will come around quick enough. My husband and I have had a great talk about it all and we have both decided that no matter what the results are I am going to see a spealist about preventative Mastectomy. I have fairly strong family history and going through this every year is so stressful and as my risk is slightly increased we belive this is best fo me. I am not making thus disision lightly we have done nothing but think about it. Our plans for the future is to travel and live on a boat i do not want the continued worry of this. My breast are so small you wont even notice that they are gone. As my husband jokingly says they are not my biggest assest. Happy Easter and I wish you all the best with your journey. I will let you know how Tuesday goes. Cheers and thanks for listening to me.

I had a really strong family history. On my fathers side 3 of his sisters had breast and/or ovarisn cancer and so had many of their daughters and most likely his mother. On my mothers side my sister (different Dad) had breast cancer and her daughter had breast cancer. I was tested against my father's side known brac1 gene (twice to be sure) and found not to have it. Nor any siblings...so looks like my Father didn't carry it. My sister and her daughter were checked for known genes and none found. Both my sister and I developed cancer around menopause. My niece was much younger.I did have bilateral mastectomies due to recommendation of surgeon, breast density and family history. However since no gene did not go on to have ovaries and tubes removed. It helps to have all the info. To make the decision at a time not in fear. It is a significant change to your body. They can reconstruct the look of your breast but never the feel and the surgery can be extenisive depending on what you choose. I recommend a referral to a genetic counsellour regardless of outcome as it really helped me plan my future and detection alternatives etc.

We are lucky in Hobart there isn’t really a waitlist! I’m public and it has all happened very quickly for me. I was diagnosed 18/09/17 My symptoms were a bruiselike pain in my left breast, 4 days later I felt a lump then a wk later a painful lump in my armpit (I was on holiday overseas at the time so couldn’t get the breast lump checked until 2 wks later). Drs day I arrived home, ultrasound/mammogram/biopsy 2 days later (a Thursday) with Lynne Brothers at Women’s Imaging (highly recommend she’s a straight talker) results following Mon, IVF clinic next day (I’m 31) then started chemo the next month with Louise Nott. Surgery booked for May 18 with Luke Rayner then I’ll have radiation with Marketa Skala in June. There is a “best practice” timeline for everything as well as an “acceptable practice” timeline so even as a public patient they aim for those and rarely cannot make it (although Drs leave and public holidays do impact) I must add I am a radiation therapist at the Royal so do have a little insider knowledge how how it works. Hope that helps and again feel free to ask, we are all here to support each other x

This is a great link that explains it in everyday language. There is an updated page link which shows a few different things but start with the first page.http://breast-cancer.ca/fibro-noma/

Not Diagnosed yet | BCNA Online Network

Pahill
Member
8 years ago
Thank you for replying. Yes waiting is difficult to do. Do any of you have family history? I am worried about it as the C word was mentioned by the doctor taking the samples she just said it could be. She also mentioned fibroadenoma which I have read a bit about it slightly increases the risk of cancer later on..My breast are so small due to a lot of weight loss they are not my biggest assest so taking them off looks good to me at this stage even if its ok this time. The worry and anxiety is dreadful. Has anyone done a preventative Mastectomy? Please tell me if I am asking to many questions. Cheers
cecily
Member
8 years ago
Hi Pahill. The waiting is REALLY hard. It’s difficult to stay optimistic and not assume the worst. We’ll hold thumbs for you that it’s all benign and that nothing more needs to be done. If it turns out to be a breast cancer of some sort, remember that the vast majority of breast cancers are very treatable with an excellent prognosis. Living in Australia you have access to world class care. In terms of what happens next, if the biopsy result is not benign, you will be referred to a breast surgeon and he/ she will take it from there. Most people end up having some sort of surgery within a month of this. Treatment from then on is extremely variable, depending on the type of tumour etc. Try not to think too far ahead. It will do your head in. Just stay in the moment and try to only think of the next step. Many biopsy results come back as normal so try not to panic. Easier said than done!
xx
steplightly
Member
8 years ago
Hi Pahill, Similar for me. Mammogram found cyst and had it aspirated then under ultrasound found my tumour. Small one and early stage. Core biopsy done and 1 week later results. Then more core biopsy and another wait. The wait is incredibly challenging and the mind games come. Have you been told about a local breast care nurse and been told about the free BCNA Kit? It has heaps of information that is really useful. We are here in the waiting game with you. You will find a lot of support and advice through this site. Early days and take it a step at a time. Take care.
onemargie
Member
8 years ago
Hi there Pahill. Of course you can voice your concerns on here. The waiting time is the worst isn’t it. Whatever it is we are all here for you. Have you had the genetic test? If you have a history on both sides this might be an option for you. Unfortunately you will have to wait and see what the results are sucks it’s a long weekend and you have to wait.

We all know how that feels. Stay positive love it might be nothing but either way you can always come on here for support. I suggest you just wait and see what the results are first as depending on what they are will vary with what happens next. Don’t think to far ahead and don’t google anything as results and trestment and surgery all vary so much for everyone. And like I said it might just be benign too even with your family history. Try and enjoy your easter weekend. Biggest hug. Margie. Xx

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