Forum Discussion
submarine
9 years agoMember
Newbie
Hello everyone,
I was diagnosed a couple of months ago (triple negative grade 3 stage 2), I am 32, I have a 2 year old and a 5 month old. I have had a lumpectomy and 3 AC chemo so far and the side effects are starting to really hit me and I thought it'd be nice to be able to discuss it all with people who understand what I am going through!
I have never been part of a forum before so I hope this is a good start! :smile:
I was diagnosed a couple of months ago (triple negative grade 3 stage 2), I am 32, I have a 2 year old and a 5 month old. I have had a lumpectomy and 3 AC chemo so far and the side effects are starting to really hit me and I thought it'd be nice to be able to discuss it all with people who understand what I am going through!
I have never been part of a forum before so I hope this is a good start! :smile:
21 Replies
- Tracey62Memberwhen I had chemo last year several ladies suggested Fruit Tingles for that horrible metallic taste. In my chemo fog I forgot to try it, but it might be worth a go xx
- GlemmisMemberHi Ro10 I had the skin rash too on my back around round 2 of AC but was helped with Moo Goo, just had round 3 so will see if it comes back. Also my head was sore & itchy before my hair fair out & used olive oil which has now settled, just minor things overall, a bit of nausea but not too bad. Still feeling quite energetic. Considering my surgeon said "it would knock me flat" I think I am doing well so far!
- Ro10MemberWelcome @submarine and sorry you have had to join us. I was also diagnosed a few months ago and am 34 with a 15 month old daughter. I have had a lumpectomy and am having 4 rounds of AC and 12 rounds of taxol. I'm only 2 weeks past my first round and so far am feeling ok but I'm expecting that the side effects will be cumulative so I may not be feeling this good in a few months :neutral:
I have also been told to tell my oncologist about all my side effects as some of them can be managed quite well. So far mine haven't been too bad, just a bit of nausea, feeling lethargic and getting a skin rash at about day 10 that went away on its own. I've also heard that the AC is worse than the taxol so hopefully the second half of your treatment will be a bit more bearable
Rochelle xxx - ccasperMemberHi @submarine. Sorry to hear about your diagnosis. Sounds similar to me.
i am also a youngen on here. 30 with a 15 month old little boy and also triple negative.
such a shock but I am so thankful for my son. He is helping me get through everything. I have had 4 x AC and am having carboplatin and taxol. I am 3 of 12 into my regime. I will have surgery next year after chemo.
Anything you want to ask, more than happy to help! X - GlemmisMemberHi Submarine, I had a mastectomy & 12 lump nodes removed estrogen positive with lymphovascular spread. I had my 3rd AC yesterday & then will have 12 Taxol & radiotherapy. I have managed to work 3 days a week so far & only started to feel a bit tired this week but haven't slept well for a long time. I am also exercising a couple of times per week & doing Encore program. i have had quite bad reflux so have been told to take Nexium but nothing seems to fix the metallic taste. It seems to be worse the first week. Only 1 more to go & then it will get easier I am told! Take care
- socodaMemberHi Submarine, I too had never been part of a forum. But what a forum it is!!! While our surgeries and treatments are different we all share our common bond, and understand the fears and anxiety that you are facing.Just know that we are here to support and back you up as much as we possibly can. Wishing you all the best. Xx Cath
- submarineMemberThank you so much for your messages, they got me teary!!
@Pinkkittykat my treatment plan is the same as yours so it's great to have someone who has gone through it too.
Sending hugs and love back to you all,
Marine - PinkkittykatMemberHi Submarine
welcome to the website, I know you must be feeling overwhelmed by everything, I like you was diagnosed in April this year stage 2 grade 3 triple negative, it has been a roller coaster ride to say the least, I had a lumpectomy and 4 rounds of AC chemo followed by 12 treatments of taxol (I only completed 9 due to side effects), and I am about to start radiation. I was floored by the chemo, I was doing chemo every 3 weeks, the metallic taste was constant, the tiredness was ever present, and of course the nausea, I was sleep deprived as well at the beginning. Mentally I was spent, especially when I was left on my own, hubby & sons would go off to work and I would spiral into depression, I found I had too much time on my hands to think. I'd found pottering around in the garden or watching my favourite movies helped me. I have also joined the YMCA Encore program and this has been a welcome relief for me, the program goes for 8 week and its for breast cancer patients, I recommend it. I was ok about loosing my hair, eyelashes & brows I knew they were going, but now just want to get back to some normality. Make sure you ask for support whether it is family or friends, having such a young family will be exhausting at the moment for you, and let your oncology team know your side effects, but mostly open up and talk as much as you want to any of us here, everyone's journey is different but we are all in this together, take care and sending you hugs, Sophie - Jess_BCNAMemberHi there @submarine - just jumping in to also welcome you to the online network - if you need any help making your way around just let us know, as Nadi said, we are all here to support you - jess x
- NadiMemberHi Submarine. So sorry to hear about your diagnosis. This a great place to get information about treatment from others who have gone through or are going through what you are experiencing. We are all so different but unfortunately some people have tougher times with chemo than others. Is there one particular chemo side effect that is worse than the others? Do you have to have radiation? I had a lumpectomy, 4 rounds of TC chemo, 30 sessions of radiation and 17 rounds of Herceptin. I only have 2 more herceptins to go and then I would have had over 12 months of treatment. Having young kids also presents a unique set of challenges. I have 3 boys but they are much older. Ask any questions you want and I am sure someone on here will have an answer for you. It's also good to let your oncology team know about ALL side effects. They are so used to treating these that they may have some really good tips or other drugs to help you as well. I know how overwhelming treatment can be so if you ever need to vent come on here as well. We are all here to support you.
Sending hugs, Nadine