Forum Discussion
Susan1
16 years agoMember
New to this
HI, I have finally found out how to get into site, and I am like many probably seeking the inevitable answers to my many questions.
I live in the Newcsatle areaI was diagnosed with Breast cancer on 27/8/10 and as of 15/910 I have had a mastectomy, got home yesterday from hospital, am in a fair bit of pain, and its really starting to sink in.
I have a 6 monthly check , February there was nothing then the ultrasound picked up my lump,Results tonight say it was 2.1cm Grade 2 and 2 lymph nodes were removed 1 clear the other not.
This has turned our lives upside down as it has all happened so quickly. Sometimes I look at my husband and little girl who is 9 and wonder is this all a nightmare.
My specialist phoned thru results tonight, I see him Friday for my chemo plan etc,
I am so worried , and glad I can read on here other peoples positive results, I pray mine will be also in this category.
I didnt realise until now how much support is out there for Breast Cancer sufferers.
Will pop in now regularly for chats I hope.
Regards Sue
18 Replies
- Susan1Member
HI Moira, well isnt sorbolene amazing, I will try tonight, thankyou, I dont think I am having radiotherapy will no for sure tomorrow, however am having Chemo, but I will def try this...Thankyou again Sue
- moira1Member
hey susan,
during radiotherapy, i was told only to use sorbolene cream to wash and put on my breast to keep the area supple, i did say to the doc, i'll smell and he said no you wont. so i done it and guess what i am 18months finished and have never had to use deoderant since. before that i would never have gone without deoderant, but i think it was habit. Mind you i keep telling my husband to let me know if i stink lol. nothing so far....
- moira1Member
hey susan,
during radiotherapy, i was told only to use sorbolene cream to wash and put on my breast to keep the area supple, i did say to the doc, i'll smell and he said no you wont. so i done it and guess what i am 18months finished and have never had to use deoderant since. before that i would never have gone without deoderant, but i think it was habit. Mind you i keep telling my husband to let me know if i stink lol. nothing so far....
- Susan1Member
Hi Pamela,
Sorry to hear of your news, yes it is quite a shock, these things will never happen, actually I always used to say I didnt have time, what a reality shock it has been you have no choice....
I will admit I am so worried abt this being in my lymph node, but I can only pray that the chemo will work and I will remain positive....For the first time I am praying to be old one day.I want to see my little girl grow up.......funny isnt it how things change., there was a time when i never wanted to get old.....
The deodorant issue, well as I used to use a sport one before the one I have now which is the Crystal from Coles doesnt appear to work , but I cannot use th stick atm as it is still to tender under one of my arms, I am hunting the other one you mentioned atm, and yes I found out about the shaving in hospital, and I had a little laugh to myself the other day,as we had bought my hubby a new electric shaver for Fathers Day, as he travels and thought it would be handy for work, but he had to surrender it for the moment, but I like the idea from the Shaver shop, as I dont know about you but my skin burns under that arm now and the specialist said it was nerves and it could last this pain for up to 2 years.....for which i nearly died as it is so uncomfortable, but the cornflour etc seems as though it would be less friction, I will def look into this..
Thankyou again Pamela for your information and kind thoughts, and good luck with your journey as well.
Will keep in touch..
Cheers Sue..
- PamelaMember
Like you, I'm new to this. I was diagnosed with DCIS on 6/8/10 & within 3 weeks had had a wide excision with sentinal node biopsy which lead to having a total mastectomy.
Hell of a roller coaster ride!! Not only for my but for my family & friends. I have been blessed with lots of support & a great outcome - no chemo or radiotherapy & as the cancer was wholly contained within the breast it has "gone". I do worry about the remaining breast but shall stay forever vigilant.
On the deodorant - I have successfully used Body Crystal Stick Deodorant bought from local Coles Supermarket for around $12 but am aware of another called Crystal Essence Mineral Deodorant Spray. I haven't used it but am going to see if I can find it to try it out. I'll let you know if it's ok. Also, be aware not to use a blade to shave under your arm (I'm sure you know this already!) - I have purchased a Cleancut personal groomer from The Shaver Shop which has a brush to apply cornflour on the area before use to stop irritation from the blades. Am yet to use it & again, will let you know how I go.
Good luck with your journey,
Hope to chat again soon,
Regards Pamela
- Susan1Member
HI all, I have been told I have to use aluminium free deodorant, is there any one better than another, I have Crystal but not impressed with it.
Also after my op my skin under my arm stings continuously like it is burnt , did anyone else have this sympton and if so what did u do, it is actually not broken skin there, but Dr said underneath it is nerve endings that have been tampered with and can last as long as two years, it is very uncomfortable all the time.
Thanks for this Sue
- Susan1Member
HI all, I have been told I have to use aluminium free deodorant, is there any one better than another, I have Crystal but not impressed with it.
Also after my op my skin under my arm stings continuously like it is burnt , did anyone else have this sympton and if so what did u do, it is actually not broken skin there, but Dr said underneath it is nerve endings that have been tampered with and can last as long as two years, it is very uncomfortable all the time.
Thanks for this Sue
- Susan1Member
HI all, I have been told I have to use aluminium free deodorant, is there any one better than another, I have Crystal but not impressed with it.
Also after my op my skin under my arm stings continuously like it is burnt , did anyone else have this sympton and if so what did u do, it is actually not broken skin there, but Dr said underneath it is nerve endings that have been tampered with and can last as long as two years, it is very uncomfortable all the time.
Thanks for this Sue
- Genevieve_56Member
I am like Tanya..19 nodes taken 3 affected...it is just 12 months since my diagnosis....mammogram and ultra sound next month..I am feeling back to normal now...as one of the other ladies said "listen to your body" that for me was one of the most important things...everything will still be there tomorrow.
You will find that most of us have different treatments depending on our oncologist. We have all had BC but we are all different.
I hope everything goes well at your appointment......chin up and don't forget to talk to others about your experiences..it helps to get it off your chest....you are not alone.
Take care
Hope to chat to you soon
Genevieve
- ShirlOMember
Hello again Sue - no you are not being nosey, that's what we are all here for, to be your sounding board so to speak. In time as you are settled in to your own journey you may feel you are able to do the same for others.
No, my nodes weren't affected. The cancer was contained in the breast - another six months and it would have been a different story.
My positive thinking isn't living in a world where everything is rosey, more like knowing what what you have and using the knowledge you have (My Journey Kit etc) to stay in a positive mind frame. You can't stop the depression creeping in and the "what if's" buzzing around in your head no matter how hard you try. Personally I found that once I recognized and was able to say - "yes, I am depressed and scared" then the "black dog" fell off my back and I got on with life. Going to Melbourne in August for the Community Training helped me so much. I heard so many different stories from the other women who were there and I feel as if I have made friends for life.
It''s great that you will have your hubby with you this afternoon ... you really need support close to home - who else will you wake up at 3am to listen to your fears and dry your tears? We would if we could but can't send you the tissues from this far away.
You take care ...... we'll talk later
Cheers ... Shirl xx