Hi all
Where have you been for all of my diagnosis.....kidding
I just stumbled upon this group today as I did a search & it came up. I have been envious of others & the support groups they go to & was thinking there has to be something in Sydney. At first i wasn't ready or really interested in support groups as I didn't want to drown in others self pity but I have learnt through a Facebook support group that as we all understand each other's journey the support you get is amazing.
I am now 2 years into my journey of ABC, diagnosed from the outset and for the most part I am stable NED from the neck down.
Would love to find out if the face to face meetings are still occurring or if there are any ladies that would just like to meet up for a coffee every now & then