Erin_B
13 years agoMember
My First Blog!
I am new to the BCNA blog. I was diagnosed at the age of 28 with grade 3, ER and PR negative, HER 2 positive and 2 positive internal mamory nodes involved. I have just completed my 6 months of chemo ...
Hi Erin,
So sorry that you are going through this at such a young age.
I did not have to have radiation or chemo, as my cancer was different to yours and had not gone to my lymph nodes. I had a mastectomy of both breasts and I am on Femara. 2 years on.
One thing I have learnt through this, is to speak up. My surgeon said I did not need any ultasounds or MRI as only a small amount of breast tissue was left. I asked my oncologist how will I know if the cancer comes back, was told if I felt unwell for 6 weeks see your GP. Well not good enough for me, my life is far more important. I went to 2 GPS , who did not listen to my concerns. After the 3rd attempt, found the most amazing GP, who agrees that you do not leave things to you feel unwell and was shocked I had nothing done apart from check up in 2 years. I have just had a ultrasound and then MRI , which she will do every 12mths and every 3mths does blood tests ( cancer markers ) and liver and kidney tests, as well as full blood count. My GP told me liver tests are good indication if something is not right. When I told her my surgeon said I did not need any scans or other tests, she said it is your right if you want them,they should do them. I told her I only have a small amount of breast tissue left in both breats and she said it only takes a small amount to have cancer. I am just so lucky I have found a GP, that says you need to be on top of this and do not wait till you are unwell before you get checked out.
It is 2 years for me and I still worry about the cancer returning, but I know I am doing everything I can .
Take care Debbie