I know exactly what you mean! I'm also private and my out of pocket so far, without the radiation, is already in the thousands. I've surpassed the Medicare threshold to 85%, and my private health insurer, who I have been with for over 10 years, have contributed less than my monthly subscription x 3 months.
Another complete injustice (personally) is that I have a strong genetic history, and started having annual mamograms and ultrasounds a few years ago - all at my own expense (less a very small rebate from Medicare), but for the most part, the cost was between $600 and $800 per year, funded by yours truely. I bore the cost because I simply couldn't not have the annual check. It was hard enough being taken seriously at first (when I was in my 20's) - for a long time I had GP's telling me I was too young to be monitored, well, guess what? Here I am.
This forum in itself is proof that BC does not descriminate - why do we have to wait to turn 40 to be taken seriously and eligable for free testing? Genetic history or not, these are issues that must be addressed.
I too have worked since highschool, paid taxes and never collected any government benefit (apart from the baby bonus that's not means tested) - I have to take a week off work on each chemo round (no pay) which adds to my loss. It's stressfull making ends meet - I haven't even started saving for an external prosthesis.
I know there are many women and families doing it a LOT tougher financially, but these are issues that must be raised!!
I have been advised to keep all my out of pocket receipts for tax time though, I am not sure how everything will be calculated - different tax bracket???
Anyway, that's my blah on the subject!
Hope you travel well through your treatment :-)
Maxene xx