Moderator moved @Kosta post from 'Activity Section' to 'General Discussion' Section:My name is Kosta and my wife was diagnosed with breast cancer in 2018, and it came back in 2021. As you all know it’s been a traumatic time, and now a few more spots have appeared which has us concerned and in an as it seems hopeless space. I'm not sure as to what I am asking, but maybe some hope?

@kosta go you good thing. Im glad you’re there for your partner. What treatment is she on at present. Having an understanding of the possible side effects is a great start but she might not get any or only mild Keep the channels of communication open do fun things together for distraction like a hobby you can do together. Also allowing yourselves some space to do your own things its a real balancing act. Treatment can be all consuming if you let it. I hope you both have a close buddy that will let you offload your fears and concerns to. often just sharing your fears can alleviate some of the stress. Accept help and ask for help if you need it. The people on this network are full of friendly and usually come up with great suggestions listening to the various podcasts together could be helpful as well

What a good partner @kostak. The fact your here seeking support is terrific. There is a closed metastatic group here too if you or your wife needs to join that. Yes it's all a bit hard but my best advice is to try to stay in the present moment and not get too far ahead of yourselves. Stat's aren't helpful and I don't think they are as accurate as they could be because up until recently there hasn't even been a way to count the number of people in Aus with breast cancer metastasis. Don't give up hope. There are new treatments coming. Sounds like you have the treatment plan. You can always ask about clinical trials too.I know google is tempting and I have been guilty of looking too but I think sometimes it's just better not to look, just stick with your treatment team as you just need to have a break from all the cancer stuff. You're already investing so much time with treatment and supportive therapy that it just takes over.If you wife is up to it, go for gentle walks, spend time in nature, picnics or whatever you both like to do together. You do need time out as well. What do you do for yourself? I have metastatic disease and my hubby is awesome with my treatment etc but he goes fishing every fortnight on a beach to just have a break and clear his head. Does your wife have any counselling? It does help alot too. Great way to vent and express how you feel. It is a real emotional roller-coaster and having someone to talk to outside the family can also be good. Ask any questions here. It's is a great group and great support. I hope you and your wife have a good day.

Thanks for that info, @kostak .... you've both had a hard trot with it xx. As @Cath62 suggested - join the Mets Group & you can chat with others, in total privacy, going thru similar. xx. I can't find anyone being on Enhertu yet (it came onto the PBS in late 2023, so that is good.) I believe joining the Mets Group will open up more info/replies about Enhertu xxWe have Mets members here who've been on treatment for 10+ years - which is great. They treat it more now as a 'chronic' disease as there have been so many advances in Mets treatment in recent years. I have 5 personal friends (not on the forum) who are Mets and they are all going really well xxxDefinitely stay away from Dr Google. Listen to your team - write down any questions & consider recording your meetings on your phone - as it is easy to totally miss one bit, whilst digesting what had just been said .... take care, both of you & all the best for the new treatment xx

Great to hear she is going OK with the new treatment - and as the Onc says, I hope the side effects WILL lessen soon and same with her hair - I hope it just thins. xx. How often are her treatments?All is good here, thank you All the best for the scans xx. take care

@kostak I am So sorry that your wife has had a recurrence ..... well done for making enquiries on behalf of your wife. It can be a rocky road - but your support of her would be invaluable! xxWas the recurrence in 2021 or this year? I hope that any treatment has been successful and that you are both getting on with 'life' as you know it ..... A bit more info on your wife's previous diagnosis & the most recent diagnosis would help us understand your wife's journey to datetake care, and all the best - have trust in your wife's medical team

Looking for hope - (ENHERTU next treatment path)

cranky_granny
Member
2 years ago
@kosta go you good thing. Im glad you’re there for your partner. What treatment is she on at present. Having an understanding of the possible side effects is a great start but she might not get any or only mild
Keep the channels of communication open do fun things together for distraction like a hobby you can do together. Also allowing yourselves some space to do your own things its a real balancing act. Treatment can be all consuming if you let it. I hope you both have a close buddy that will let you offload your fears and concerns to. often just sharing your fears can alleviate some of the stress. Accept help and ask for help if you need it.
The people on this network are full of friendly and usually come up with great suggestions
listening to the various podcasts together could be helpful as well
arpie
Member
2 years ago
@kostak I am So sorry that your wife has had a recurrence ..... well done for making enquiries on behalf of your wife. It can be a rocky road - but your support of her would be invaluable! xx

Was the recurrence in 2021 or this year? I hope that any treatment has been successful and that you are both getting on with 'life' as you know it .....

A bit more info on your wife's previous diagnosis & the most recent diagnosis would help us understand your wife's journey to date

take care, and all the best - have trust in your wife's medical team

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Looking for hope - (ENHERTU next treatment path)

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